I am BRAF Negative Wild
I have it in my pancreas, Lung, bones, and just gone to the brain, which I had removed by surgery. I nearly opted for cyberknife, but I am so pleased that I went for the traditional method of surgery. I have a lovely small scar, it was carried out at Addenbrookes, Cambridge, UK. 4 night stay and so far so.......sorry you will see I don't tempt fate.
I opted out of chemo, after checking the statistics, I think it is under 6%. Here in the UK that is the front line drug to be used Dacazbine (don't quote me). After a bit of work, leaving one London Hospital and requesting to be moved to Cambridge, I am now on the Ippy Drug, 2nd cycle. This is being paid by my BUPA which I have had for 20 years now and is a god send in these circumstances.
When you are in this situation, it is like being in a Maze, and I have said before, My husand and I were in that for three years, not sure what to do or where to turn.
I was talking to someone on the Cancer Research Line here in the UK and she was telling me how many more trials there were now for Melanoma, but it is a case of going through them all to find the right one. I know you aren't looking for a trial but I did think of that for myself being BRAF Wild. Being in the UK I wonder if you have similar in Canada?
I hope you find a suitable route soon,