Thanks for your replies.
I am trying to stay off this subject at the moment as it still makes me mad!!! which is said tongue in cheek, as it did...
What really ranks me is the word 'mood swings'. Why can't they say schizophrenia and psychotic episode's. It does say it somewhere on some literature I found, but hey who goes hunting for that information when being diagnosed with a brain tumour.
Yes I know I was a rare case, I always have been
but when you ask for help from the experts which my family, they too might as well hit their heads against a brick wall. Instead, they struggled big time on their own. Eventually unable to copy, they had to enrol the help of close friends, and take time off work and work in teams.
There was no help. Get on with it or 'her' in my case. I feel for my family most, what I put them through, some I can remember, days were lost, but many days I wish I had forgot....
My family's response to me is; 'whatever doesn't kill you makes you stronger'. They were lucky as my sister was very much in this bracket at one stage.
Enough said unfortunately, there is no clear route in the medical world. My brain tumour was missed on my PET scan in January 2013.
There were hardly any symptom's surrounding my brain tumour they crept up, were very vague, but my gut told me something wasn't quite right. I was on the case though and if my new Consultant hadn't told me the brain was included in the scan, I would have demanded one.
Funny I should have know something was up when I received a call from my 'sacked' Oncologist. She rang to see how I was after my brain tumour was confirmed on a scan, prior to ippy. Word had filtered through
I thought it strange then, but put it down to a 'no hard feelings' and good luck call after our parting of the ways, sounds far more polite, when I had my doubts on our relationship.
It was lovely to receive a letter from them a few days before my surgical resection in April when it had plenty of time to grow! This is the best part in the letter
'In hindsight we were able to visualise the abnormality in your brain on the scan from the end of January 2013'.
So onwards and upwards, I have just completed my final ippy with scans and the dreaded appointment for the results at the end of June.
Only sick once and yes that is when I had the fridge attached to my back, as my husband tells me I didn't go anywhere without it
It has taken a long time to be back to 'normal' whatever that is, now I just have to pay off the £10,000 credit card bill I acquired in the four to six weeks on dexamethasone. Yes I was manic in everyway, but a girls gotta shop LOL!
Good luck to you on your journey xx