- Posts: 1
- Joined: Sun Jul 29, 2018 10:24 pm
Since my excission on 5/15, I have had 31 punch biopsies, 5 complete mole excissions(2 dysplastic/3 with potential future issue). I have been a 'work in progress' (many moles and freckles) trying to acquire a somewhat clean slate. I go for my lymph node ultrasound Wednesday. It may or may not be above protocol, but it helps with the anxiety knowing I'm dong something to check the inside too. Would any other 1bs like to share their treatment and follow up...especially if your lesion was ulcerated.
Next, the onc asked if I would be interested in participating in Decision DX. This can give me some peace of mind or rev up my anxiety which I finally have under control, The one thing that MIGHT benefit me is that if my results come back high risk for metastizing, my insurance MIGHT pay for a yearly PET scan that they for sure won't at this time being a 1b. Has anyone participated in this test?? Has anyone seen any statistical information on how much ulceration increases your risk of metastisizing? I only found 1 article that stated there was no evidence that ulceration increased metastisizing risk in tumors less that .75 mm.
Lastly, for someone with many freckles and moles ...and the beginnings of age spots...do pictures really help? If so, do you recommend a professional or do you take them yourself? I feel I would have to take 100 pics per month.
I know we stage 1s are blessed to have caught this early...estimated 95% cure rate with excission. Never knew just how large 5% could look until I was on the inside!!!
Thank you for your time and comments.
- Posts: 61
- Joined: Tue Feb 28, 2017 3:37 pm
I wrote a few posts ago about why the don't do SLNB for our cases as too often then not it would show false negatives or inconclusive results. You are right......we are a grey area.
95% is a great number but yes, the 5% is there, and it's terrifying even for me who is over a year and a half since my initial removal. So there are many of us out there.
Hope to hear from you again soon, and again apologies for not responding right away.
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