Relapse IV 2013 - Ipilimumab

This moderated forum is to support the needs of patients with stage IV melanoma, as well as to answer questions about treatment options and what to expect.
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Dianap
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Joined: Fri Jan 11, 2013 1:40 pm
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Relapse IV 2013 - Ipilimumab

Post by Dianap » Wed Jan 08, 2020 7:28 am

Unfortunately, I have relapsed with a mass at the tail of my pancreas. On 30th December I had an EUS with bioposy and this Monday it was confirmed as melanoma.

I had started to feel unwell in October with vague symptoms of nausea, indigestion, stomach pain and started to monitor the occurence. I already had a review CT scan booked for 9th November which I saw as a safety net. Certain foods caused more problem so by cutting out and being unable to face coffee, tea and my occasion wine...drat! I felt a little better.

A PET scan is now imminent and by next week we will know whether it has travelled. I am still under the Oncology consultant in Cambridge, whom I eventually found in 2013 and has been wonderful. By the time I reached her tumours were top and tail pancreas, lung, bone and brain plus mets. I was given one dose of ipilimumab before brain surgery in April 2013, followed by three further doses. I have had no other treatment, apart from previous surgery leg, buttock.

So the one dose of ipi has served me well for the past 6 years.

Obviously I am very concerned but more hopeful than all those years ago when most of us on this forum were facing a certain death. The support of this forum during those times will never be forgotten.
I will keep you updated and your valued advise will again be greatly received.

Best wishes to all for 2020

Diana Norfolk.

Catherine Poole
Posts: 11304
Joined: Wed Jan 02, 2008 12:09 am

Re: Relapse IV 2013 - Ipilimumab

Post by Catherine Poole » Wed Jan 08, 2020 7:57 am

Diana,
so sorry to hear about your recurrence. I would be optimistic about your response to the PD1 drugs since it took little IPI to clear you up before. It sounds like you have you a very good immune system! Please let us know how you are doing and your next treatment will be. Take good care
Catherine M. Poole, President/Founder
Melanoma International Foundation

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