You might want to get some second opinions on pathology to be sure of that. Have slides sent to an expert such as Dr. Mihm (http://www.drmihm.com) he is world renowned for his expertise and they make it pretty easy to do so. Otherwise, she really wouldn’t be eligible for the scant clinical trials we have. Having the lesion on an extremity is a good prognostic indicator. Careful vigilance may be the answer for now. Keep in touch with us.