Home Forums Melanoma Diagnosis: Stage IV 29 and frustrated Reply To: 29 and frustrated

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Linny
Participant

No one in my family had melanoma, either, though my father had lymphoma. Filling out those questionnaires at the surgeon’s office at Johns Hopkins was an experience because just about all of them pertained to melanoma moles so I had a number of N/A’s as answers.

I don’t know about you, but when I was diagnosed, I felt completely blind-sighted. If I’d had a suspicious mole I would have had it taken care of. To my recollection I never had one.

My bad lymph node was about the size of a chicken egg. But I still had to have all the nodes in the axilla removed. And that’s standard procedure for those of us with unknown primaries. The reason why we had grossly swollen lymph nodes was because our body recognized the melanoma and was fighting it tooth and nail. At least that’s my understanding of it. When you think about it, that’s not too shabby.

You really need to get that second opinion. If you’re in California there appears to be no shortage of hospitals that have melanoma clinics: http://melanomainternational.org/web-resources/cancer-centers/#5” class=”bbcode_url”>http://melanomainternational.org/web-resources/cancer-centers/#5.

Don’t know if you’ve researched melanoma of unknown primary, but here’s an interesting study on it, which helped me tremendously: http://jco.ascopubs.org/content/26/4/535.full” class=”bbcode_url”>http://jco.ascopubs.org/content/26/4/535.full