Home Forums Melanoma Diagnosis: Stage IV 19 months after TIL

  • This topic is empty.
Viewing 9 posts - 1 through 9 (of 9 total)
  • Author
    Posts
  • #21265
    Hein
    Participant

    Celebration time! Today I had my 4-monthly checkup: 19 months after having done TIL, I am still completely ‘clean’. Bloodwork is clean of melanoma and CT-scan is also clean.

    Hein

    #60618
    Catherine Poole
    Keymaster

    Indeed celebrate! I only hope Pati will be right there with you in a few months. She seems to be having a rough time right now.

    #60619
    Shirley Z
    Participant

    Congratulations Hein! Such wonderful news. You deserve to celebrate, and I also pray that Pati will be celebrating with you soon. You are both so deserving of good news.

    Shirley Z

    #60620
    pati
    Participant

    Hein, so glad to hear!

    Indeed still dealing with the hearing loss and treating this week with cortisone so I hope it becomes normal like the eye problem. Fatigue is better day by day, really slowly, so I am looking forward to follow your path….

    #60621
    Hein
    Participant

    Thanks guys.

    @ P.: Praying and hoping you will get where I am…

    #60622
    Angela21
    Participant

    This is wonderful news. It is great to hear a success story. I was wondering if you had brain mets before TIL. My husband has 12 brain tumors. He is undergoing WBR right now.

    #60623
    Hein
    Participant

    Angela,

    I did not have braintumors. Braintumors are an exclusion upto now for the TIL’s in Amsterdam. I know they did TIL on at least two patients with brainmets at Christie’s in Manchester. It has been proven TIL also works on braintumors, but I don’t know if there are complete responders who had braintumors. I have been told braintumors are an additional risk for TIL because of possible liquidation or hemoridges in the brain but I don’t know if that’s true.

    Hein

    #60624
    Angela21
    Participant

    Thank you for the information.

    #60625
    frannny
    Participant

    What is TIL?

    congratulations!.

Viewing 9 posts - 1 through 9 (of 9 total)
  • The forum ‘Melanoma Diagnosis: Stage IV’ is closed to new topics and replies.