So – had my scans on Friday (the 13th mind you). I started Zelboarf on May 30th. Had to tak a week off due to horrible rash. Saw my doctor today. EKG was good. Scans show shrinkage. Can’t tell you how much – since their computer systems went down and they couldn’t print out my latest CT. Will continue on the reduced dose (3 pills 2x’s per day).
Now to take a much needed vacation! Headed to London for the Olympics! Will see my doctor the week I return. Our plan for now is to continue Zelboraf. We will scan mid Sept and then look at switching to Ipi.
Thanks guys! Of course I would have been happier to hear things were clear already lol! but I’ll take shrinking. and in all honesty – the stomach cramps I was having from Jan to May have gone so that is better! 😆
Hope you are all doing well! I’m actually excited that it will be cooler and rainy in London and Scotland (we’re doing a long weekend in Edinburgh). I’ve almost given myself heat stroke with all the layers I’ve been wearing out in the 100+ degree weather!
I just returned from overseas and many of the folks from England and Ireland were complaining about cold rainy weather and I couldn’t begin to tell them how welcome that would be here in the U.S. with our drought and continued hot weather!