My scans last week continue to show no signs of any disease. I am now 2 yrs NED and 3.5 yrs since stage 4 and start of treatment with ipi 10 mg (only treatment thus far). So blessed to be a responder! Keeping everyone battling this disease in my prayers and praying more & more will be responders whether treating with ipi, braf/MEK or PD1.
Very encouraging news, thanks for sharing it. I had primary Grade 4 in 2008, metastasised in 2012, M1(c) late 2013. Treated with Ipi plus Gamma Knife for brain mets Dec 2013. NED since April 2014, hoping to follow your example. Keep us posted, as I am sure success stories like yours will encourage so many.
My husband just started IPI yesterday. He was 15 months on Zelboraf when we noticed progression, and just finished 2 weeks of brain radiation last week. We really hope the IPI will help. Please update us, becaue we hope you feel good, and we learn from your expereince. Tammie
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