Home Forums Melanoma: Stage III Chaga

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  • #22105
    roman
    Participant

    Hello,

    Background

    I am Stage IIIB (T1-4a, N2c,M0). In May 2011, I had a growth removed from my earlobe which turned out to be spitzoid melanoma breslow depth 2mm clarks level IV, subsequent WLE & SLNB were negative. In January 2014 (about 2.5 years later), I noticed a small lump under the skin on the same ear about 1 cm from the scar from the prior WLE. It turned out to also be melanoma. In my oncologist’s opinion, it was likely a local recurrence or satelite but not a new primary. I did another WLE and SLNB which were both negative again, thank God. I am now doing close monitoring and also participating in a Hadassah Hospital (Israel) vaccine trial. See http://clinicaltrials.gov/show/NCT01861938” class=”bbcode_url”>http://clinicaltrials.gov/show/NCT01861938

    Question

    I have read a lot about a rare mushroom called “chaga” as a potent immune-boosting supplement that has had (allegedly) success in particular in combatting melanoma. See, for example, http://www.ncbi.nlm.nih.gov/pubmed/19041933” class=”bbcode_url”>http://www.ncbi.nlm.nih.gov/pubmed/19041933

    Does anyone know anything about this? Are any particular brands recommended? Doses?

    Thanks,

    Anthony

    #65007
    greenshaek
    Participant

    Hello Anthony, I’m just curious to know how you got into this trial and where it is taking place?

    #65008
    roman
    Participant

    I was put on the trial by my oncologist, Prof Michal Lotem, at Hadassah Medical Center in Jerusalem. You need to have a certain tissue type (HLA) to be eligible, so tissue testing is the first step. The trial is very early phase. I view it as a bit of a “stab in the dark” that may or may not help but probably can’t hurt.

    Regards,

    Anthony

    #65009
    farang100
    Participant

    roman wrote:

    Hello,

    Background

    I am Stage IIIB (T1-4a, N2c,M0). In May 2011, I had a growth removed from my earlobe which turned out to be spitzoid melanoma breslow depth 2mm clarks level IV, subsequent WLE & SLNB were negative. In January 2014 (about 2.5 years later), I noticed a small lump under the skin on the same ear about 1 cm from the scar from the prior WLE. It turned out to also be melanoma. In my oncologist’s opinion, it was likely a local recurrence or satelite but not a new primary. I did another WLE and SLNB which were both negative again, thank God. I am now doing close monitoring and also participating in a Hadassah Hospital (Israel) vaccine trial. See http://clinicaltrials.gov/show/NCT01861938” class=”bbcode_url”>http://clinicaltrials.gov/show/NCT01861938

    Question

    I have read a lot about a rare mushroom called “chaga” as a potent immune-boosting supplement that has had (allegedly) success in particular in combatting melanoma. See, for example, http://www.ncbi.nlm.nih.gov/pubmed/19041933” class=”bbcode_url”>http://www.ncbi.nlm.nih.gov/pubmed/19041933

    Does anyone know anything about this? Are any particular brands recommended? Doses?

    Thanks,

    Anthony

    I don’t know about chaga but you could try mistletoe as quite a number of studies have indicated that it boosts cd4 count and helps normalise cd4 cd8 ratios which if poor indicate a worse prognosis for melanoma patients.

    #65010
    Catherine Poole
    Keymaster

    You can find out more about Chaga mushroom here: http://www.mskcc.org/cancer-care/herb/chaga-mushroom

    And studies show mistletoe can have serious side effects and may not be a good treatment for melanoma. So look for randomized, scientific background first. Here’s an analysis of mistletoe: http://www.cancer.gov/cancertopics/pdq/cam/mistletoe/HealthProfessional/page5

    #65011
    farang100
    Participant

    Catherine Poole wrote:

    You can find out more about Chaga mushroom here: http://www.mskcc.org/cancer-care/herb/chaga-mushroom

    And studies show mistletoe can have serious side effects and may not be a good treatment for melanoma. So look for randomized, scientific background first. Here’s an analysis of mistletoe: http://www.cancer.gov/cancertopics/pdq/cam/mistletoe/HealthProfessional/page5

    I am not sure where you found serious side effects from mistletoe because the majority of studies reveal only mild side effects like rash at injection site.

    But most studies have indicated improvement in quality of life which is something that is vitally important for cancer patients.

    Other studies have revealed improvement in immune function as well. Most of the research has been done in Europe and more specifically Germany where it is used extensively and is funded by the govt health insurance.

    It is very easy to see if it Improves your immune function. Get your Cd4 cd8 count done and ratio and then check your numbers after taking mistletoe for a couple of months.

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