Home Forums Melanoma: Newly Diagnosed – Stages I & II Daughter diagnosed, 2mm?

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  • #20964
    shep
    Participant

    My daughter’s biopsy came back as melanoma 1/22/13. Her dermatologist told her it was 2mm deep but had her schedule a surgery to remove more with a surgeon. This procedure is to take place 2/7/13 along with a radioactive ‘tracer(?)’ test, I guess, to find out if it has metastized? Did the dermatologist ask her to see a surgeon because it could be deeper, or is this just a normal practice? Her appointment today with surgeon left us with more questions. He will be taking a ‘diamond’ tissue removal instead of ‘circular’. This has no meaning to us, and she has not been ‘up’ to asking questions yet… thanks for any help!!

    #58823
    Catherine Poole
    Keymaster

    Your daughter is very scared right now and it is normal. She needs a Sentinel Node Biopsy which you can read about here on our website at: http://www.melanomainternational.org/melanoma_info/sentinel_node_biopsy.html

    Also, I highly recommend you look over the topics in BLUE above, especially the terms and newly diagnosed section.

    Once she has received her results from the SLNB, she will know her stage which depends on whether they find any melanoma cells in the lymph nodes. From there we can try to guide you, but there are few adjuvant therapies for melanoma from stage 2-3.

    It is great you are doing research for her until she is in a better state of mind to deal with it all. It is overwhelming I am sure. Make sure she is getting treatment in a place of excellence too. Let us know how we can support you.

    #58824
    shep
    Participant

    Thank you Dr. Poole. She told me they will do testing and/or removal of lymph nodes that show any mitosis(?) from radioactive tracing. And i will read the ‘Blue” stuff above!!

    #58825
    Catherine Poole
    Keymaster

    Shep, I’m not a doctor, but patient navigator. If you go to the link I gave you it explains what the sentinel node biopsy does, here is a bit of it: “This diagnostic technique involves injecting a small amount of radioactive material around the site of a primary melanoma and then scanning different areas–the armpits and groin, for example–to see which one or ones “light up.” The technique is called sentinel lymph node biopsy (or SNLB) and has been designed to determine whether the lymph node that would potentially receive colonies of cells from the primary melanoma has actually done so.

    I hope that helps you further.

    #58826
    shep
    Participant

    new information on my daughter. she has had 6 more nevi removed, 3 were positive but not malignant. she is now being diagnosed as having dysplastic nevus syndrome, more nevi to be biopsied. still no WLE or SNLB (scheduled for Feb 7) however, with this new diagnosis, should we be looking at a clinical trial? there is one being done and actively recruiting at 3 locations near us. 2 in Chicago at Rush and Northwestern. another in Peoria (even closer) at OSF St. Francis. the trial # is NCT00297895. it looks as though this decision must be made prior to a WLE or SNLB which would be performed at Peoria or Chicago locations and not at our current appointed surgery. Please let me know about this trial, as much of the terminology is foreign.

    #58827
    Catherine Poole
    Keymaster

    NO! Your daughter has dysplastic nevi, my husband and his family all have it and they are just watched closely. It just means you need to have whole body photography and go to a pigmented lesion clinic if possible. I will look to see where there is one, but possibly Northwestern does. Her previous moles removed were benign. So no worry. It is doubtful any would be malignant, but with careful watching, you will find any change early. This is not a serious disease, but just a syndrome that many people have. Rush has a clinic: http://www.rush.edu/rumc/page-R12605.html

    and Northwestern has one too: http://www.cancer.northwestern.edu/public/learn/early_detection/programs/s_pigmented.cfm

    I would get a second opinion from either one.

    #58828
    shep
    Participant

    she has been diagnosed as melenoma (minimally stage IIB depending on WLE and SLNB) AND with dysplastic nevus syndrome. this is why i asked about the trial, because she has been diagnosed with melanoma (2mm deep with ulceration). sorry about the confusion.

    #58829
    Catherine Poole
    Keymaster

    Ok, I looked at that trial. You don’t know if she have positive nodes yet? This trial specifies: All subjects receive sentinel lymphadenectomy. If the subject is sentinel node positive and meets study requirements, the subject is randomized to receive either (1) completion lymphadenectomy (2) observation with nodal ultrasound. Interesting trial! Let us know what you/she decide.

    #58830
    shep
    Participant

    ok, thanks… will do… still nothing but waiting till the 7th of feb. i have e-mailed the trial contacts to get more information. this is a world where it seems you get info one step at a time as you get more information to lead you to the next ‘step’. i did hear from a forum at MRF from a survivor who participated in a similar trial, different # with good results. trial started in 2004 with this person and is ongoing. had manageble lymphodemia(?) with complete lymphodectamy(?) or LND(?)

    #58831
    shep
    Participant

    my daughter’s 4 lymph nodes found to be sentinels two each under her arms were returned negative!!! her WLE from primary and 4 other dysplastic nevi all returned benign also. she was diagnosed melanoma positive on 1/22, had her SLNB and WLE surgeries on feb 7 and drove with us 5 1/2 hours south the next morning to help coach her sister thru her first child’s birth… very proud of her. we were so worried because the radioactive isotopes only took 15 minutes to reach the sentinels. results came back on tues 2/12 and i burst into tears at the news. we are so thankful and am wishing well to all in this forum who have helped me get a handle on this disease. now she realizes how important it is to keep up on her nevi conditions.

    #58832
    cohanja
    Participant

    what does it indicate, the time it takes the isotopes to reach the sentinels? i didn’t realize that had meaning

    congratulations on the results, good news

    #58833
    shep
    Participant

    cohanja… well, usually the techs that administered the test said it could take up to 1 1/2 hours for the results to show up in the lymph nodes. we were worried that since it didn’t take much time, that it would be more likely that the melanoma could have traveled to these nodes. i posted this to let others know that a quick response doesn’t necessarily mean anything. thanks

    #58834
    Jenni
    Participant

    Just wanted to say , Congratulations on the good news!!!! Have a great weekend I hope your daughter (and everyone) can get back to living life. Just keep up on those derm appts!!

    Best,

    Jenni

    #58835
    Worrywart
    Participant

    :P Congratulations on the great news!

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