Lost my beloved last night. It all seems surreal. But I have gathered much experience in advocacy I never knew existed! I could start a whole different advocacy group for Lewy Body Dementia with the experience I gained. But it is not time for that now. I do urge others to be strong and stick up for your loved one’s comfort! Use palliative care early on. Don’t save it for the end. Patients need to be comfortable always as much as possible day one. There are so many I’ve seen who had no advocate and it saddens me. I will be doing some hard thinking on how this could be improved. I feel closer than ever to all of you caregivers, and know your pain and spiritual weariness very well. It is the courage to continue that counts!
Facing your grief and loss is tough but shouldn’t be avoided. If you feel sad, so be it. Cry if you want to as crying can be healing. Don’t look to depressants such as alcohol to heal you, it only makes things worse. Talk to someone, a therapist is always a good idea if you can find a good one. I wish this was covered more often by insurance. Your mind and body are very connected so take good care of yourself.
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