Hello,
I just wanted to write about my Ipi experience since I have noticed concerns from patients starting the treatment. I was hyperventilating thinking about doing Ipi, but I’m glad that I did it considering it’s required before PD1. It really was not as bad as I had feared, but I realize it varies for everyone. I made it through all four with one visit to the er for headaches. On my 3rd infusion, I had trouble breathing, but it was resolved with meds’; which they also used for my 4th treatment. I’ve been on 60 mg of prednisone for diarrhea, and it has helped immensely. I go for scans on the 17th. I’m glad that I’ve taken the chance with Ipi. I feel that my body needed some help. I’m not sure where I go after the scans. I’ve been NED since June, but I’m trying to be prepared with information for alternate plans. Thanks all for your most valuable information. I think I got through the Ipi because of everyone’s detailed input. Blessings.
Cheris