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September 25, 2012 at 10:55 am #20643
Since i couldnt find any swedish forums for skincancer im just going to share my experiance with this cancer in sweden.
it all started about 3 years ago i got a bleeding little mole in the arch of my foot, At the moment i had shoes that not really fit my foot that good so i didnt think any more of that since of my work, im a truckdriver and my feets get alot of abuse having workboots.
well now about 3months ago my asthma was messing with me so i had to go to the docs, for a medical certificate for beeing sick one 2nd week (needed in sweden).
That was my real blessing, i would still not know of my cancer if this hadent happen.
anyway they sent me to a great dermatologist.
My cancer didnt look really like it should. since when it started bleeding i used one of those bandaids you use on chafes (not sure of spelling). My mole actully had a skinlayer over the cancer.. but he sent me to get a Biopsy anyway since in his opinion it should be removed anyway.
well in the end they they cut 2cm from the mole and removed 2 nodes 1 behind the knee and one in the groin.
And now im sitting in anxiety on week 5 waiting for my SNB answer.
The answers from en SNB must come before they put me in next step and send me to a dermatologist again for checking the rest of my moles.September 25, 2012 at 1:33 pm #56701msue5Participant
I can’t imagine waiting that long. I consider the 10 days waiting for my SNB to be the worst I had to go through and I am waiting for surgery to find out if I am stage 4 now. Is there anyway to speed up the process. Those results have to be sitting on someone’s desk. I would call every day till I got an answer. If they only knew the agony of waiting for those results. I felt like my life was on hold. I’m sorry you have to go through this.
Mary SueSeptember 26, 2012 at 3:24 am #56702Lisa PParticipant
… and I’m sorry that both of you have to play the waiting game like this. It’s the worst. I could barely believe how hard my heart was beating during the time I had to wait for my last biopsy to come back. Luckily, I have a great support system, which I used without hesitation. I hope both of you can do the same. If not, please keep coming here to receive encouragement and feedback. It’s so important that you don’t go throug this alone. Sending good thoughts your way, LisaSeptember 26, 2012 at 9:01 am #56703 Got the answers today:)
Nodes looked fine:) they found some more stuff they wanna check though.September 26, 2012 at 2:51 pm #56704
Anyone got some experiance.. will this be the last i see of this cancer or do it sometimes get back even when you havent had a serious first melanoma?September 26, 2012 at 3:01 pm #56705BigRed1984Participant Congratulations that is great news! I am not an expert, just a patient, but from what I understand melanoma is very unpredictable. And I think your prognosis is in relation to the depth of your lesion. I am sure others more knowledgeable will chime in.September 26, 2012 at 3:25 pm #56706msue5Participant Great news! I will have thoracic surgery next Thursday to remove enlarged node in my chest and then I get to wait again. No fun.
Mary SueSeptember 26, 2012 at 4:54 pm #56707
I was hoping to feel happy when i got nice news.. i just feel indifferent.. like they are lieing.. feels like there still is something wrong.. Maybe it just takes timeSeptember 26, 2012 at 11:04 pm #56708Catherine PooleKeymaster Welcome to our forum. Yes, it does take time to regulate your feelings. It is a very anxious time. How deep was your lesion? (Breslow measurement?) That is often the indicator for risk factor. Worrying doesn’t help though. Let us know if you find out anything else that we can help you with. You are in a good place to find support.September 28, 2012 at 9:00 am #56709 Talked with the doctor.. it was 2.1mm.
Gonna ask more about it when i get to talk to an doctor that knows more about it.
im currently only with Plastic Surgery since it was he who did the operation.September 28, 2012 at 10:20 am #56710martiParticipant
Next time you see your dr. ask him for a copy of your pathology-report. Ofcourse Breslow is the most important measurements, but there are other parameters like mitose. On this board, there are experts who can explain your more.
Further, its very lucky they have found and treated your melanoma, also with an SNB. Is your doctor a specialist on melanoma, or are you treated in a melanoma-center? There must be melanome- epxerts, or hospitals in Sweden –
So your nodes where cancer-free, What is other stuff you are telling about? Please give some more info (if you have) so people on this board can try to help you through all the rollercoaster – experniences of this disease.
MartiSeptember 28, 2012 at 10:44 am #56711
we got the treatment in other steps then yours.. there are certain melanoma centers i think.. but i went trough the “normal” state owned system. SNB is allways done on melanoma over 1mm.
1. Healthcenter – showed them my mole, she sent me to the Dermatologist.
2. dermatologist/biopsy – since it was on the foot i got sent to plastic surgery.
3. plastic surgery – took the first biospy and made the 2nd larger removal and the SNB. when they are done with all the test etc, like now i will be sent to next step.
4. oncology clinic. then after that the next step is the following visits to check if any more moles seems to turn into melanoma. think they send me back to dermatologist for the following checks.
so right now im waiting to be sent to a guy that is specialized in cancer and not plastic surgery. and i will try to think of good questions. like if a good SNB is 100% sure nothing have gone past them.
Hopefully i wont have to wait so long for a time at the oncology clinic.
They checked another mole on the foot and that was a normal mole.September 28, 2012 at 8:13 pm #56712martiParticipant
Maybe the steps taken by your doctors, so far, are not so different then in other places.It seems that the guide-lines (as for SNB for lesions 1.mm and more) are the same everywhere. In The Netherlands I was told the same. Mine was at least 0,6 (shave biopsy) on my outer ear.
Your WLE/SNB was done by a plastic surgeon, I think because of the location (arch under your foot), so many delicate structures under your foot, it seems a wise decision.
It is fortunate that nothing ” bad” was found at the SNB. It does not give you a guarantee that all the cells are gone, but it is a VERY positive sign. Nothing in life is guaranteed, as we all know, but you can congratulate yourself so far. Of course you are going through a roller-coaster of feelings, thats completely normal.
The diagnosis is a very scary one, as we are all aware of, but with time this will get better and better. PLUS you can see how many people on this forum, with the same diagnosis life many many years without having the melanoma ever coming back.
Maybe you can ask a copy of your pathology report (there is nothing strange about that question)-, in the further details is sometimes more information, so the experts on this forum, and there are many, can help you with the more detailed information.
I hope your foot is healing well,to me it seems a place that is very sensitive. I truly hope some others will chime in with advise what to ask you doctor next time, since I am not sure what to expect/ask with a melanoma under your foot.
MartiSeptember 28, 2012 at 11:28 pm #56713Lisa PParticipant
I know from experience how scary and upsetting all this is — especially when you don’t have a lot of information. When are you meeting with a specialist to discuss the pathology report? Hopefully, you won’t have to wait too long as it’s the waiting that kills me…
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