I went to onc on Tuesday (4 days ago ). My MRI results were good . The 2 larger brain mets that were both 2.2 cm have shrunk. 1 is 1.3cm and 1 is 1.5 cm. doc said by volume they are almost 50%smaller. The 8 small ones didn’t show any change but doc said that could just be because they are so small. I have started back on Zelboraf. Although I don’t like living the vampire life (hiding from the sun), I do not want to take any chances of getting another severe sunburn. I have scars from the last one I got! I am feeling much more like myself and less like the crazy person that I was when I got done with radiation. I also had steroid induced psychosis that kept me from sleeping for a week. I was not mentally well then. I am on a steroid ween now. I’m down to 2mg every other day. Can’t wait to be done because I have a lot of side effects from them( moon face, stomach problems, weakness, insomnia) . I won’t have another scan for about 6-8 weeks unless things seem to get worse. So I’m just hanging out for now. Trying to find the good things in every day. That’s not hard with my beautiful 6 yr old daughter here. I mentioned in previous post that she had a heart transplant in may. She’s so healthy now!! Hard for old Mom to keep up but Im gonna keep trying .
You have a terrific outlook and we are certainly here to support you. I can’t imagine the difficulties you have faced with your daughter’s situation and now yours as well. Take good care and make sure your husband is taking good care of himself too!