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May 8, 2016 at 9:48 pm #22851
Hi I am new,
My dad has desmoplatic melanoma on his forehead, cheeks and through nose. He has had 3 iv of keytruda now and the itching is unbearable for him. He has anti histamine, coconut oil, calomine lotion, aloe Vera gel, cold compresses but nothing seems to alleviate it. Has anyone else experienced this please? We are desperate for him. The tumours are growing on his face and he is suffering more every day as the area widens. Many thanks Jennie xxMay 8, 2016 at 10:16 pm #68841jennunicornParticipant
I would let his doctor know, they might give him a steroid hydrocortisone cream to help alleviate the itching. Hope he gets some relief soon, intense itching is torture to deal with.May 10, 2016 at 10:07 am #firstname.lastname@example.orgParticipant Dr. might put him on low dose prednisone i.e. no more than 10 mg to control this horribly annoying side effect of the immunotherapies..low dose predinisone should not interfere with the immunotherapies working but definitely ask his Dr!May 10, 2016 at 2:38 pm #68843 Absolutely, quality of life is number one! Call and see what they can do to rectify this. Itching can be like pain, hard to deal with.May 13, 2016 at 12:42 am #68844 Thank you for your replies xxMay 13, 2016 at 3:37 pm #68845gostanParticipant I had the identical issues all over my body. Prednisone helped temporarily, but not permanently, so I had to move on. Best of luck dealing with these awful side effects.May 14, 2016 at 6:53 pm #68846 His doctor was not happy to put him on it it has given a stronger antihistamine which is making him very sleepy and hasn’t seemed to help much with the itching.May 15, 2016 at 12:59 pm #68847 Oral and/or by injection, prednisone or other brands may help the itching and inflammation. Have you tried advil? I don’t think I’ve heard of antihistamines helping with this reaction.May 15, 2016 at 9:39 pm #68848rochelleParticipant I was prescribed hydroxyzine during ipi treatment. I was covered with the dreaded rash and all I had to do was think about how itchy this rash was and a whole new round scratching would begin. The hydroxyzine didn’t provide complete relief but it took the edge off. It was sedating so I only took it at night and actually that is when the itching would be the worst…wishing your dad some relief..
MarthaMay 16, 2016 at 11:59 am #68849
Thanks for the information. Here is more on this drug:
Sounds like a great alternative to prednisone! How are you Martha?May 18, 2016 at 11:23 am #68850rochelleParticipant
Good morning Catherine,
Things are going well…still on treatment…still stable…and still playing a lot of rock and roll!!
On June 16th, I will be attending a very important graduation that 7 1/2 years ago I feared I would never see..so my cup runneth over…now I have to figure out how not to cry like a baby through the whole graduation…ps..this child will be going pre-med in the fall..color me proudMay 18, 2016 at 11:28 am #68851
I am so happy for you, I remember a different scenario not too long ago. It is ok to cry, actually it is healing too, so let it flow. I remember embarrasing my children when we went to a Disney movie and I lost it! That is wonderful about premed too. Keep playing that rocknroll!May 22, 2016 at 1:31 pm #68852
Having read on another post on here that anti histamine are unlikely to help with itching and as this our doctor in the uk wouldn’t prescribe presinol we have been trying lots of different topical treatments and have found calomine lotion applied to the whole area seems to be providing slightly less itching. Thanks one and all xx
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