Home Forums Melanoma Diagnosis: Stage IV Ipi – NYU v MSKCC

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  • #21752
    Steven
    Participant

    Hello all

    I am about to start Ipi and currently a patient at MSK. I am not happy there (long story) and have a second opinion at NYU.

    It seems to me that the most important issue is how repsonsive the nursing staff is answering questions and worries 24/7.

    Two questions: do you agree that is the most important issue?

    If you have had experience with NYU or MSK with Ipi, or another drug that involved constant contact with the nursing team, do you have an opinion on their responsiveness?

    Thanks.

    #63382
    MathewR
    Participant

    Totally agree. Nursing staff must be available and responsive. You should also have immediate access to your doctor in an emergency. I see Dr. Schuchter at UPenn. She gives her cell phone number to patients. Thankfully, I’ve not had to use it. I do, however, keep in contact with her nurse in between appts via email. I always get a response within hours. This is how it “should be”. It’s not like I have the common cold, right? That said, I was previously with another Mel specialist. Great guy when you had an in office appointment, but totally missing the other pieces. I suspect this is true of other institutions as you’ve suggested. Unfortunate.

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