Home Forums Melanoma Diagnosis: Stage IV Is PCV sensible option?

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  • #21529
    KK2013
    Guest

    Hi there,

    Hubby has brain mets. One debulked in Nov, radiation in Dec, another debulked in Jan. They grew a lot in a three month period so in May we stared Temozolomide. Had four rounds of that, recent MRI shows three have grown a lot again (one’s disappeared, another has arrived).

    Looking at starting PCV next week. Any experience/success experienced with PCV please?

    Been offered Interferon with Five Fluroeurycine (spelling) as another option. Any advice please?

    Doing other stuff too – Ketogenic diet, supplements (pro-biotics etc), Vit C, Salvestrol, Wobenzyne, Coumarin, Tamoxifen, Enzogenol, Vit D to name a few.

    I read about about a huge number of trials on the website but nothing happening here in NZ. Do you know if its possible to get on a trial in a different country? Feel like our options are so limited but maybe we just need to get on plane – maybe it’s not that easy.

    Things are progressing – have to get on top of it.

    Was previously on the Caregivers forum under a different name – KKWilson, have re-registered due to log in probs.

    Look forward to hearing from you – any ideas and help appreciated – feeling a bit lost and desperate.

    KK

    #62219
    lak1
    Participant

    i m sorry I am in the UK what dose PCV stand for I dont recognise that abbreviation

    #62220
    Simon Craigie
    Participant

    Hi KK,

    There are a number of trials here in NZ.

    Contact the nurse at The Melanoma Foundation of NZ (http://www.melanoma.org.nz/Contact-us/).

    Cheers

    Simon

    #62221
    Catherine Poole
    Keymaster

    Pcv according to this site I found is temodar: http://brain.mgh.harvard.edu/chemoguide.htm

    It is a type of dacarbazine, without a high response rate. You might look at trials in Australia too, try the centers listed on our global list under the Melanoma Info tab. Travel can be good for a trial you can’t find locally. I hope things get better for both of you.

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