Hubby has brain mets. One debulked in Nov, radiation in Dec, another debulked in Jan. They grew a lot in a three month period so in May we stared Temozolomide. Had four rounds of that, recent MRI shows three have grown a lot again (one’s disappeared, another has arrived).
Looking at starting PCV next week. Any experience/success experienced with PCV please?
Been offered Interferon with Five Fluroeurycine (spelling) as another option. Any advice please?
Doing other stuff too – Ketogenic diet, supplements (pro-biotics etc), Vit C, Salvestrol, Wobenzyne, Coumarin, Tamoxifen, Enzogenol, Vit D to name a few.
I read about about a huge number of trials on the website but nothing happening here in NZ. Do you know if its possible to get on a trial in a different country? Feel like our options are so limited but maybe we just need to get on plane – maybe it’s not that easy.
Things are progressing – have to get on top of it.
Was previously on the Caregivers forum under a different name – KKWilson, have re-registered due to log in probs.
Look forward to hearing from you – any ideas and help appreciated – feeling a bit lost and desperate.
It is a type of dacarbazine, without a high response rate. You might look at trials in Australia too, try the centers listed on our global list under the Melanoma Info tab. Travel can be good for a trial you can’t find locally. I hope things get better for both of you.
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