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December 10, 2013 at 2:20 am #21706
Been having stomach issues for a few years now, but lately it has been worse. GI doctor had me do a ultra sound of the gall bladder, when doing so, found a mass on my liver. They are pretty dang sure that it is a hemangioma, but because of my history, wanted me to have a CT scan. Really felt very good about this, but of course, last night my mind went everywhere it shouldn’t go. Have this incredible sick feeling and can’t share it with anyone other than you all here. I pray it is nothing, and I think it is nothing, for the most part. Anyone else go through this with cyst, benign tumors, any kind of Mass that freakin scares the hell out of you? Brings you back to the first time you heard the words ” cancer”?December 10, 2013 at 2:34 am #63178 About a year after my melanoma diagnosis, I had a chest xray. My Dr warned me against getting chest xray because he said there are many times false positives show up, but once we go down that road he has to check out anything that shows up even though odds are it probably is nothing given my primary pathology. But I wanted an xray, and sure enough things showed up that he had to pursue further. As I understand how he explained it to me, the CT was necessary to confirm the growths seen were calcified, which would indicate granuloma. I guess the xray can’t see that. I wasn’t thrilled with all the radiation I was exposed to during the CT scan, but I guess if nothing else it’s a baseline in case I ever needed a future xray for something else. . when they see it again, at least I’d have this baseline to know it’s the same thing, same size, etc. as before and hasn’t grown. With your pathology (was it 0.26mm?), odds are it’s not melanoma; but now that they’ve seen something during the GI they will want to check it out and be sure.December 10, 2013 at 1:37 pm #63179 Yes, cohanja, the first one was 0.26, the other 4 that I had (5 Mel’s in 6 weeks time) were 2 insitus, the other two were 0.33 and I can’t remember but last one I think was 0.38. …….I believe it is benign, but still just a tiny part of me is very nervous. Normally, I do NOT even think about melanoma anymore, other than stay out of sun, put sunblock on every day and wear a hat when I am out, I feel very good about it all, except, like I said last night, when you go to the doc and they say you have a MSS on your liver, or, the skin doc tells me they are watching mores spots……just, a Reminder i guess, to be careful.December 10, 2013 at 8:26 pm #63180wpatterson4ParticipantQuote:
Really felt very good about this, but of course, last night my mind went everywhere it shouldn’t go.
It’s only natural to be nervous. I just passed through a freak-out spell of my own a few days ago. To a certain extent, we, and everyone, should be vigilant. The important thing is that you are doing what’s necessary. I have a feeling it is probably what your physician says it is, however. Let us know how it goes.December 11, 2013 at 12:16 am #63181tbeauParticipant
I had a CT scan in March of 2013 after a mel diagnosis in July of 2012 (Stage 1b) Nodular. The CT scan was ordered because I was having pain in the groin area. They found a small spot on my liver and did an ultrasound and said it was a calcium deposit. I still struggle with whether or when the mel will spread. Some days are better than others. Days leading up to appointments with my derm are difficult. I hope that all works out for you.December 12, 2013 at 3:35 pm #63182 Went to GI doc yesterday for results , the scan showed nothing, the doctor feel that I should have a scan again in 6 months, the radiologist thinks I need to have a MRI to decide on what they see on the ultrasound. I have an appointment with my dermatologist next Tuesday so I will ask them for their opinion on what todo. The doctor, my husband and I, all feel that it is nothing and wait for 6 months to rescAn, any thoughts?December 12, 2013 at 4:11 pm #63183 MRI isn’t radiation. CT scans are a lot of radiation. If they can do scans that limit your radiation exposure, that’s optimal.December 21, 2013 at 1:45 pm #63184 PET scan scheduled for Monday dec 30. Wasn’t going to have it but Tuesday I had three biopsies and one came back early melanoma. Derm thought it was a basil as it was a pink bump, no dark pigmentation at all, to her surprise ( AND MINE) it was Mel. Having my sixth excision January 2nd. It’s not the size of my issues they are concerned about , it’s the amount of issues. I was not happy with the news yesterday, still a bit pissed off that I am doing this crap again, in 9 months. But know how fortunate I am. I will say I am now scared to have the scan as I know it can show false positives, and I can’t stop hearing the words my surgeon said to me the first time, ” it only takes 1 cell to go rogue!!!!! What is wrong with my skin???????? They told me I have very different skin, not the typical!December 21, 2013 at 2:35 pm #63185 I wonder about that “only takes 1 cell to go rogue”. . I thought there is a whole mechanism that has to occur, that 1 cell has to survive a lot in the body to transport, escape the body’s immune system, form a tumor, etc. . I don’t think it’s as simple or easy as 1 cell going rogue, I don’t know.December 21, 2013 at 4:07 pm #63186wpatterson4Participant Sorry to hear about your situation. I wish you all the best.
How “early” was this melanoma? I hope it was in situ, of course.December 22, 2013 at 2:58 am #63187dk06Participant
I can definitely related. On the day I found out about my melanoma, I was scheduled for an abdominal ultrasound in the afternoon and I got the call saying I had cancer just before lunch. Talk about being a freaking wreck! That revealed a simple cyst. I was just at my urologist and he wants me to do a repeat ultrasound now that it has been 3 years just to be “extra sure” it hasn’t grown. I’m dreading that!
After the initial ultrasound, I was directed to do a CT for the other medical issue I had going on. It didn’t warrant a CT with contrast, but tech talked me into it because of my melanoma diagnosis.
Good luck!December 30, 2013 at 12:55 am #63188WorrywartParticipant
Wow, so sorry you’ve been dx with so many melanomas. I wonder if that is just how your body makes nevi – you make ‘funny’ moles? I hope this is all you have to deal w/ for a long long time. Thinking of you!January 2, 2014 at 11:17 pm #63189 I all,, happy new year to you all. I was suppose to have the PET scan on Monday but it was canceled due to insurance company. Had the WLE today and it was the easiest of all to come off. Didn’t feel the needle going in at all……very impressed. Anyway, I asked the surgeon ” why am I getting so mny if them in such a short period of time” , she really didn’t have much to offer on it,other than sometimes patients with leukemia or lymphoma tend to get several melanomas due to the cells breaking down…..clan ANYONE please guide me on this?
My husband and I are both annoyed with tht fact that I a getting them and don’t know why…is it simple ????? Simple as far as it was sun exposure back inthe day? Have had 3 Mel in situ and 3 malignant Mel’s all since march this past year….feeling VERY frustrated and scared, what do I do?January 3, 2014 at 1:28 pm #63190WorrywartParticipant
I am so sorry you have had so many melanomas, but glad this last one is behind you. I hope that its the last!!
Are you on any medications that might weaken your immune system?January 3, 2014 at 1:42 pm #63191Catherine PooleKeymaster
I think you should look into being seen by specialists at a Pigmented Lesion Clinic. There are folks who make lots of moles, and funny looking moles (dysplastic nevi). It has nothing to do with any of the blood cancers but instead a family or genetic trait. You need to continue your skin vigilance but also be watched by a specialist. What part of the country do you live in? Perhaps we can find a clinic near you. It is worth the travel if needbe. Once you are seen in a place of excellence, it is less stressful normally because of their extent of knowledge.
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