Home Forums Melanoma Diagnosis: Stage IV Merck PD1 #13 and 36 week scans

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  • #21616
    erinmay22
    Participant

    I know I’ve been slow on updating. Where did the summer go? I started Merck’s anti-pd1 in Jan of this year. I started to get some shrinkage prior to starting (late responder to ipi?). I’ve been on Merck’s low dose now for 36+ weeks. My scans continue to show small tumors getting smaller and nothing new. (a year ago I had a large tumor removed from my small intestine but they couldn’t remove the tumors in the lymph nodes surrounding it).

    This seems to be a great drug so far with minimal side effects. Fatigue sits in sometime (ok, maybe it’s self inflicted?) but so far so good!

    Just wanted to share and provide some hope!

    Erin

    http://www.melanomaandthecity.blogspot.com “people will forget what you said, people will forget what you did, but people will never forget how you made them feel’ Maya Angelou

    #62671
    pastwinner
    Participant

    Wonderful news, Erin!!!! So happy to hear this!

    Lear

    #62672
    Dick_K
    Participant

    Hi Erin, thanks for posting your good news.

    Dick

    #62673
    Anonymous
    Guest

    Outstanding Erin!! :) :)

    #62674
    Catherine Poole
    Keymaster

    Great News ERIN!! Can’t tell you how you made my day. Thanks for sharing here.

    #62675
    erinmay22
    Participant

    Thanks everyone :) What a difference a year makes! I’m almost back to being a ‘boring’ patient ;)

    #62676
    buffcody
    Participant

    Wonderful to start the morning with your great news!

    Frank

    #62677
    gostan
    Participant

    Erin

    Simply Superb! I am going to have an extra bounce in my step today to try to match yours.

    #62678
    Biljana
    Participant

    Great news Erin,

    Hope you will stay ‘boring patient’ for years and years from now!

    Biljana

    #62679
    tasjacques
    Participant

    Erin so happy for you!!! It is really a good medication…my husband is also responding, we are so happy.

    Enjoy your ‘boring’ days :)

    Elenise

    #62680
    Sandalwood36
    Participant

    Congrats Erin! Please know that my thoughts and prayers are still with all on this forum and all battling this horrific disease. You go girl!

    #62681
    BNP68
    Participant

    Erin,

    You and I have a similar diagnosis. In May I had about 24cm of my small intestines removed which had 4 masses. I also had some lymph node involvement that was removed during the surgery. Thought they got it all and maybe they did but a couple months later they found some additional mets in some lymph nodes in the intestines area that were unresectable. I’m now in the BMS anti-PD1/IPI trial. I know everyone is responds differently but I’m hoping our similar diagnosis equates to similar results from the treatment!

    Brian

    #62682
    Sula
    Participant

    hi Erin —

    I think of you while I wait & wait in that 4th floor MSKCC room — but your news is worth waiting for, and I’m so HAPPY for you. Here’s hoping that the BMS PD#1 is going to provide similar results.

    Enjoying your blog — it’s inspiring!

    all the best,

    Ursula

    #62683
    erinmay22
    Participant

    Thanks Everyone!

    Brian – yes, it does sound like we have similar stories. They removed 1 lymph node with my small bowel resection, but there were several they couldn’t get to. Guess they were surrounding the main artery to my small intestine and trying to remove it meant risk of destroying blood flow to the small bowel. Here’s hoping it works for you!

    Ursula – you’re a patient at sloan also? Who’s your doctor? I was down on the 4th floor, but given my results so far and the fact that they’ve added SO many patients to the trials I’ve been moved back to my doctor on the 5th floor. Doesn’t mean the wait times are any less! lol :)

    Here’s hoping the BMS drug does the same for you!

    Have a great weekend!

    Erin

    #62684
    Sula
    Participant

    I’m with Dr. Wolchok. Just at week 12.

Viewing 15 posts - 1 through 15 (of 19 total)
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