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October 9, 2019 at 10:23 pm #23540jessica_fParticipant
Hi everyone, I’m a 43yo female in good health, NED since my lung resection + IPI in 2015/16. Other than a scare last year with my spine (lesions turned out to be inactive on PET), I’ve been in good health.
I got my scan results this week and a new spot showed up in my lungs. My onc thinks that it’s a mucus plug but I’m not sick / don’t have asthma or any kind of lung issues.
She’s suggested that I get re-scanned in 3 months.
Have any of you heard this kind of result before? I went through two years of watching my lung mets slowly grow because she was convinced they were benign. She’s a terrific melanoma onc but is not an alarmist. I’m scratching my head trying to figure out how I could all of a sudden have a spot of mucus show up in my lungs when I’m healthy. And given my history of being told that something was benign when it wasn’t, I’m skeptical. Any thoughts would be appreciated… (I don’t yet have the scan results from my chart but I saw the spot on the lung scan and it looks to be about a centimeter or two in length based on the size of my previous mets).
JessicaOctober 10, 2019 at 2:10 pm #71025RespmanParticipant
I would ask for a pulmonary consult. If it is a simple mucus plug they can do an outpatient bronchoscopy and clean it right up. If it’s not, they can biopsy it. Either way your concerns are taken care of and you aren’t waiting to see what happens. Good luck!
Jim Doughfman MS, RRTOctober 11, 2019 at 12:28 pm #71026Catherine PooleKeymaster
If you are only relying on PET Scans, they notoriously show false positives. I would ask for a CT or CAT scan. Otherwise, many folks show spots on their lungs that turn out to be nothing serious. You might also seek another opinion. Take care.October 11, 2019 at 4:33 pm #71027jessica_fParticipant
Thanks Jim and Catherine. Catherine it was a CT that found the spot but I might take Jim’s advice and have it biopsied. Might at least give me some piece of mind…
JessicaJanuary 20, 2020 at 2:49 am #71028Catherine12Participant
My oncologist tried to tell me this exact same thing in Jun 2019 when 2 nodules appeared in my chest CT and she said it was nothing most likely mucus plugging. I was shocked as it didn’t appear as such. Next 3 month CT showed increase growth oncologist again said it’s nothing, likely mucus plugging let’s wait. I insisted on a referral to a thoracic surgeon instead. I ended up having a lobectomy thoracic surgeon knew better and both nodules sadly were metastatic melanoma. I am now stage 4 Bradf neg and just had my 1st nivo infusion. It took 7 months from that first scan to infusion and l begged pushed and pleaded. Best to have a lung specialist who actually knows what nodules look like then a medical oncologist who thinks it might be mucus. They can and do get it wrong. Better safe than sorry.January 20, 2020 at 1:02 pm #71029Catherine PooleKeymaster Thank you so much for posting. And congrats on a great job advocating for yourself. I am sorry to hear of the results but hopefully the immunotherapy will bring you good results. Please let us know how you are doing. Your post is very valuable to others here.
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