Home Forums Melanoma Diagnosis: Stages I &II Multiple melanomas in close proximity and time.

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  • #21766
    Profgal43
    Participant

    Hi everyone,

    I am curious to know if anyone else has had similar experiences to mine and if so how your treatment proceeded. I also just wanted to reach out and connect with others who are fighting this illness and winning.

    My first melanoma was stage one in 2009. It was on the front of my right lower leg. My second was about three inches from the first and it was excised six months ago; it was also stage one. I am recovering from surgery for melanoma #3 and #4, both again on the front of my lower right leg. I am now enrolled in a melanoma clinic at my local research hospital. The docs say the melanomas are not satellites, but there is a “field of damage” on that leg and I am likely to keep growing melanomas. (I have also had five other spots biopsied in that same area and all had abnormal cells.) The other issue I have is I have many moles (100+) and the moles that have been melanoma look just like the rest. I have identified the last three based only on the fact that they were new and growing and in the area of my original surgery. I feel like a ticking time bomb! There are twelve new little moles on that leg right now and are they anywhere else?? Nerve wracking. I do know that I have been very lucky to have them diagnosed so early thus far. I had a lymph node biopsy 6 months ago and it was clear.

    Has anyone else had similar experiences? What course of treatment have your docs followed? My melanoma doc is going to treat my leg with imiquimod after the surgery. Has anyone else had experience with this? I know its experimental, but it seems like its worth a shot as the only other option is to keep cutting and cutting and hope we get them all.

    Any words of wisdom or encouragement you have to offer is appreciated. I would be happy to share support with others; this will be ongoing for me.

    Best wishes and good thoughts and prayers for all of you,

    Karen

    #63413
    Catherine Poole
    Keymaster

    Karen,

    Melanoma is frequently on the legs of women because that is an area we try to tan. Did this leg get a lot of exposure? You should also consider whole body photography to follow your moles and see if new ones pop up or if something changes. You are catching them early which is a good thing and it often takes a year or more for things to change into melanoma. If you are going to a good specialized clinic then they should be very aware of photography. Hope things slow down for you!

    #63414
    olivermb
    Participant

    Hi Karen,

    I have had three melanoma in-situs, with all three being on my feet/ankles. The first one I caught in 2010, and the next two in 2012. I had the full-body photo done, and am really glad I did. It’s great to be able to look carefully and see what is/is not new or changing. If you ever want to chat, let me know and we can arrange a time.

    Yours,

    Mary

    #63415
    Profgal43
    Participant

    Thanks Catherine! Yes we have been using whole body photography since my first melanoma 4 years ago. Problem I have is that at least early on my melanomas have all looked exactly like the rest of my 100 moles. I have caught the last three myself because they were new and growing fast. Yes I tanned quite frequently in my 30s and sunblock was unheard of when I was a kid. People used tanning lotion and baby oil to cook themselves! Three in six months all in a small area on my leg has been overwhelming. Yes I am seeing a specialist at a research hospital now. I am hoping this slows down soon! Hopefully the Imiquimod will help.

    Thank you for your response and I appreciate this forum. Incredible inspirational people here!! Thank you, Karen

    Catherine Poole wrote:

    Karen,

    Melanoma is frequently on the legs of women because that is an area we try to tan. Did this leg get a lot of exposure? You should also consider whole body photography to follow your moles and see if new ones pop up or if something changes. You are catching them early which is a good thing and it often takes a year or more for things to change into melanoma. If you are going to a good specialized clinic then they should be very aware of photography. Hope things slow down for you!

    #63416
    Profgal43
    Participant

    Hi Mary,

    Thank you for your response. So that makes two years for you now melanoma free? That’s great and reassuring. I had my first four years ago, then three in the past six months. I had wide excision on two two weeks ago plus about 10 more biopsies. Yes I would be very happy to chat. It’s good to talk to someone who knows what it’s like to go through this; the uncertainty and stress. And even the physical impact; my leg has been carved up. I know I am lucky to have caught them early, but it’s still stressful. I am in Indiana US Eastern Time zone I would be happy to chat or email. Thanks for reaching out! Karen

    quote=”olivermb”]Hi Karen,

    I have had three melanoma in-situs, with all three being on my feet/ankles. The first one I caught in 2010, and the next two in 2012. I had the full-body photo done, and am really glad I did. It’s great to be able to look carefully and see what is/is not new or changing. If you ever want to chat, let me know and we can arrange a time.

    Yours,

    Mary[/quote]

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