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September 29, 2012 at 10:19 pm #20656
In 1971, I had a malignant melanoma mole on my back. It was removed and a skin graft was added to close the wound. The operation was sucessful and I lived a fantastic life without any medicines. In June 2012, I was informed (after 3 melanoma tumors were removed) that I have stage IV malignant melanoma. One of the tumors was above my right breast, one was my right lung and the third tumor was in the front of my brain. I started taking Zelboraf on August 19th. I am 58 years old, and started LTD from work, as I fight this disease. So far, aches and pains, rash that has disappeared after taking Claritin, and some tiredness. I am waiting to see what else happens while I am on Zelboraf. I live close to UVA and if Zelboraf doesn’t work, I plan to go into another treatment at UVA. I am fighting some minor side effects, rash that Claritin helps, aches and pains in my legs, but nothing I cannot live with, so far. I am 58 years old and put myself on long term disability, as I fight this disease. I appreciate all of the great information I read on this website, good and bad. Cheers to all who are fighting and care taking to all fighting Melanoma!September 29, 2012 at 11:52 pm #56783erinmay22Participant
Sorry to hear about stage iv. I’m right there with you. I have posted on my blog most of the side effects I dealt with while on Zelboraf ( ). http://melanomaandthecity.blogspot.com/2012/06/boring-weekend.html
I started with horrible rash from chin to toes. Had to be taken off for a week and then started on a lower dose. Then the worst parts were joint pain (traveling joint pain.. never know what will hurt that day), lost 1/2 my hair, eye lashes, eye brows, etc. Had ‘chicken skin’ – rough red bumps. They didn’t itch but just strange looking. sun sensitivity was the worst – especially dealing with it during the heat of the summer.
Best of luck! I hope it works for you! It wasn’t working well for me so I took my first dose of ipi this week.
ErinSeptember 30, 2012 at 12:19 am #56784
Thanks for your reply. I will check your blog. It’s good to hear what people are going thru on the medicine. Sorry, it wasn’t working for you. I am hoping I can stay on the meds, but, time will tell. Good luck to you on the new meds!
Best wishes, Sharon.November 15, 2012 at 8:52 pm #56785
About 2 months after my brain surgery, I started getting headaches and on the 5th day I woke up with Bells Palsy. I went into the hospital and several Neuro surgeons were sure it was Bells Palsy. They started me on steroids and after 6 weeks, my face is so much better. I had started taking Zelboraf around Sept 18, and while in the hospital, they found that Melanoma had started in my spleen. They took me off of Zelboraf, and I begin the ip2 clinical trial at University of Virginia Hospital under Geoffrey Weis on Dec.10, 2012. If anyone has any advice for me, please respond. I see ip1, but not much on ip2. Thank you.
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