Home Forums Melanoma Diagnosis: Stage IV One Year NED – Ipi

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  • #21654
    WITom
    Participant

    I saw my oncologist earlier this week and my recent scans continue to show NED status! I am now 1 year NED & 2.5 years since my stage 4 diagnosis and start of treatment (clinical trial with Ipi 10 mg – total 6 infusions). I continue to feel great. It’s amazing what I have been able to experience & be apart of over the past 2+ years with my 3 sons (ages 16 – 21) and wife – all the kids milestones/holidays/25th anniversary and just regular days – everyday truly is a blessing!! Next Tuesday I get to celebrate my 53rd Birthday.

    I realize I have been extremely fortunate and blessed thus far to be one of the ipi responders. I am very hopeful & encouraged by the recent pooled analysis of the various ipi clinical trials (see “Pooled Analysis Reinforces Long Term Survival….. 10/3/13 posting on MRF forum). I continue to keep everyone battling this disease & their families in my prayers. I also hope and pray that if & when I need to resume treatment that I have the strength and courage demonstrated by so many here.

    #62901
    BNP68
    Participant

    Congrats Tom,

    I started IPI 2 days ago on a Nivo/IPI sequential trial so your post is very timely and encouraging. Thanks for taking the time to post and give others hope. Glad to hear you are enjoying life.

    Brian

    #62902
    Catherine Poole
    Keymaster

    Always like to start my day with happy news!

    #62903
    Violeta
    Participant

    Hi Tom, what wonderful news, congratulations! indeed these info are giving us a lot of hope!

    My sister finished her last infusion of yervoy on 16 october . Maybe is too early , but her melanoma progress fast and I am very worried that she cannot even begin the anti-PD1 trial if her condition is getting worst.

    The article you have posted is also is giving a lot of hope.

    Still.. in order to ”arrive” there (to survival) one has first to respond to Yervoy. The responses rates are not so high unfortunately. I heard about different percentages e.g between 15 and 25-28 %. Is because are used different concentrations ?What do you know about this? And how long took for you to respond to yervoy (weeks, months)?

    Any comment is welcome.

    My best wishes!

    #62904
    gostan
    Participant

    So wonderful to read about good results. Way to go!

    I am hoping for similar results after failing over the last 7 + months to get into a nivolumab trial due to brain mets. My first post Yervoy scan is in the middle of January. Who says patience is a virtue?

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