Home Forums Melanoma: Stage III Pelvic lymph node lit up

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  • #23292
    Tracyyy
    Participant

    Hi all,

    My mum had positive lymph nodes in groin and had them removed on 12/12/2017. 6 of them were removed and 3 were positive for melanoma. She recovered from surgery and had PET/CT scan yesterday in order to plan further treatment. Today we got the results and one pelvic node lit up. It had quite high SUV uptake like 22. Trying to be positive and good thing is she is still stage 3 C. Before PET scan we were had a plan to go with local radiation and Nivo adjuvant but this node messed up our plans and I am getting overwhelmed. Tommorow we are going to see what our onc will suggest. I was hoping so much that the scan would be clear. Now I am trying to put myself together and be strong for my mum and help her go ahead with decisions. Thank you all for being there! Needed to share my feelings…

    #70461
    Catherine Poole
    Keymaster

    I would definitely go ahead with the PD1 (Nivo) adjuvant. I do trust CT scans more than PET which can have false positives. I am sure this can be scary for all of you and the best you can do is take it one step at a time, don’t look back or forward, just the current moment. The spread seems very localized so again know that the nodes are designed to capture anything foreign in our bodies and are doing their job. You will be in our thoughts.

    #70462
    bcbcbc55
    Participant

    Best Of luck for you and you mom. There are Petct scans all in one machine now

    Robert Cathey Stage 3B

    #70463
    Tracyyy
    Participant

    Thank you both, we really should take one step at a time. On Monday mum is having an ultrasound only of the pelvic area in order to see the exact location of the node and then plan surgery to remove it ASAP. She had the PET/CT combo after groin dissection on 12/12/2017. We were wondering if this node could have popped up in the 2 month period after the groin dissection or maybe it was there before that but the ultrasound did not catch it as it was hidden… P. S. Before groin dissection she had only ultrasound, then the PET/CT

    #70464
    Catherine Poole
    Keymaster

    I think the CAT scan is going to be a better indicator than the ultrasound would be.

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