Home Forums Melanoma Diagnosis: Stages I &II Recurring melanoma, anyone else?

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  • #23557
    Farmwife
    Participant

    Hi,

    I was diagnosed with melanoma in September of this year, had my WLE and SNLB done in October and all came back good and clear. Phew! Last week I found a new mole on my scar, so I had a biopsy done and today found out its positive for melanoma. And I have a few other moles around my scar that need to be biopsied now too. I just want to bawl! I have an appointment with the oncologist next week, but I am wondering in the meantime if they treat recurrences any differently? Do they usually do any scans or anything if a recurrence happens this quickly? I’m just not sure what to expect, I feel like I was more prepared the first time around….

    #71046
    Catherine Poole
    Keymaster

    I am sure this is a shock to your system but try to take it a day at a time. Do you have pathology reports on the new biopsies?

    We are here to help you!

    #71047
    Farmwife
    Participant

    The biopsy from last week is in situ so that’s good news. I’m getting a few other biopsies done next week so we will see what those end up being. I just never thought it would recurrence so fast. I’m wondering what treatment will be especially if the other moles come back positive. Or if the oncologist will want to do a ct scan.

    #71048
    Catherine Poole
    Keymaster

    If the moles are insitu, they are new moles unrelated to your prior melanoma most likely. They would not be considered a recurrence, but I would ask your medical team’s opinion on that.

    #71049
    Farmwife
    Participant

    Ok thank you. It’s just so weird that the positive mole was growing ON my scar, but we will know more next week. I’m very anxious to get the results of the other biopsies too. I looked again last night at my back and little moles just seem to be popping up all around my scar. Trying not to think about it though…..

    #71050
    Farmwife
    Participant

    Also I just looked at my lab work and it says the melanoma is consistent with recurring/residual melanoma😬. I hope it’s a new melanoma though, sounds like that would be the better senorio . Thanks for answering my questions, I hope you have a wonderful Thanksgiving!

    #71051
    Catherine Poole
    Keymaster

    I think you should see an expert if you can. Can you travel to a place of excellence? Where are you going now?

    #71052
    Farmwife
    Participant

    I am going to Cancer Care to talk to the oncologist next week(the same surgeon that did my first SNLB and WLE). He specializes in melanoma and pancreatic cancer. I feel very comfortable with him but I guess I don’t have much experience in this so I could be way off base. My regular dermatologist does the biopsies though and will be doing the new ones next week also. What do you think? Are there some red flags for you?

    #71053
    Farmwife
    Participant

    So after doing more research I do find it strange that my lab work says its consistent with recurrent/residual melanoma in situ. That sentence is confusing to me, if I understand things correctly in situ melanoma can’t usually be recurrent/residual since it’s usually a new growth like you stated above. I’m going to ask my dermatologist about this on Tuesday when I go in for more biopsies and also the oncologist on Thursday. What are your thoughts Catherine?

    #71054
    Catherine Poole
    Keymaster

    What do you mean by Cancer Care? Is this a private facility? Connected to a teaching institution?

    I think you need to be in the hands of experts, I find this confusing as well. It doesn’t sound like a recur of the original melanoma. I would get another opinion on the pathology as well. A great place to send your slides for another opinion is: https://www.brighamandwomens.org/dermatology/consultation-second-opinion-service/mihm-cutaneous-pathology-consultative-service-overview

    Dr. Mihm is world renown for his expertise. Where do you live? I can’t help you find an expert to guide you.

    #71055
    Farmwife
    Participant

    Hi Catherine,

    I live in Eastern Washington state and we travel to Spokane to see the dermatologist and the oncologist. Cancer care Northwest is a company here that treats all kinds of cancers, but my doctor specializes in melanoma and pancreatic cancer. I can assure you I will be asking lots more questions about my pathology results next week when I see both doctors. And will be looking elsewhere if needed. Do you have any recommendations? Or any new thoughts on my pathology results? Thanks so much!

    #71056
    Catherine Poole
    Keymaster

    It is easy enough to send your slides somewhere else to an expert for an opinion. In your area, the UCLA group is absolutely the best, Antoni Ribas, MD is the top expert there. I would go for another opinion. There is a big difference between a “new” mole and a recurrence and the treatment consequences. Feel free to call me on our helpline: 610-942-3432 if you would like to discuss further. Hope the appointment goes well

    #71057
    Catherine Poole
    Keymaster

    PS> What did your original melanoma pathology say? How deep? What type of biopsy and you did have a WLE.

    #71058
    Farmwife
    Participant

    My original melanoma was 1.15 mm thick and the mitotic rate was 4. I had a WLE and an SNLB and the nodes came back clear so we thought we were done with this.

    #71059
    Catherine Poole
    Keymaster

    Let us know what your doctor says at the appt. As I suggested, a second opinion would be helpful and at a place known for excellent research to be sure.

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