May 10, 2018 at 12:15 am #23343
Hello my friends:
Just doing a little writing therapy here. Today I went for a PET/CT scan and will get the results Friday morning from my doctor. When, and if all is well, I will officially be 5 years NED from Stage 3C. The problem is that today after the scan was done, they re-scanned my head and neck so my heart is raising. I asked the technician afterwards and he said he was sorry to make me upset but they supposedly had to redo the CT and PET of the head because he said I must have moved and the images weren’t lining up. He claims that is all but I am so nervous!!! Anyone have a similar situation?May 10, 2018 at 11:44 am #70542Catherine PooleKeymaster
Take a deep breath and then another. Yes, that happens. It is highly doubtful you have anything to worry about. I totally understand how you feel. I know we all hang on every word and movement our medical teams make and it is very stressful. Please let us know here your results so we can celebrate together!May 12, 2018 at 11:45 am #70543 Hello All:
PET/CT scans were good! One small lymph node in neck that will be evaluated again in 3 months that is most likely reactive due to the allergy and sinus issues I’ve been having. My doctor is not concerned but wants a “clean” report but she has agreed 5 years NED!May 12, 2018 at 12:17 pm #70544Catherine PooleKeymaster
Great news! I hope you will celebrate and be especially generous with yourself..May 14, 2018 at 2:02 am #70545AnonymousGuest Most excellent AquaMak.May 22, 2020 at 12:32 am #71219
2020 update – Just had my 7 year PET/CT scan on 5/4 and it showed a foci of FDG avid attenuation in the parotid surgery bed as well as 4 enlarged left neck FDG avid lymph nodes. The lymph nodes are not large (i think 1.5 CM the largest) and the SUV relatively low (2.1-3.9) compared to the 7.7 I had 6+ years ago when I had my 1st occurrence. My Melanoma specialist is visibly upset as I have been NED for 6 years and have had no recurrences. I had a left neck dissection and parotidectomy with 60+ lymph nodes removed and only 1 Lymph node involve with no extra capsular spread. I also participated in a dendritic cell vaccine trail but no other adjuvant therapy.
When we had our video-visit after my test I asked her if my infected left eye had any bearing on this and she said that having the infection was reassuring so instead of immediately going in for biopsies, etc. she decided to wait and re-scan in 3 weeks which will be on 6/1. In the meantime, I had a face-to-face (w/mask) exam by my eye MD and what was though to be bacterial pink eye turned out to be viral herpes simplex in my left eye which he said could definitely fire up the lymph nodes especially with reduced lymph nodes and altered lymphatic drainage due to the past surgery. So i sit and wait with extreme anxiety. I am hoping and praying for a positive outcome but I am very worried about it as I have a bad feeling.
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