Home Forums Melanoma Diagnosis: Stage IV Stage IV NED after 5 years – How often do you get scans?

  • This topic is empty.
Viewing 5 posts - 1 through 5 (of 5 total)
  • Author
    Posts
  • #21199
    Alicia
    Participant

    I have been NED/stable for 8 years now. During the last couple of yearly check ups my onco said that we could stop the scans. I would like to know what others are doing.

    Alicia

    #60149
    EricW1
    Participant

    Hi Alicia…I do not know the answer to your question…but congrats on the NED for so long….I see you had a lung met…can i ask what treatments you may have done? My wife has lung mets and just started Ipi…thanks and good luck…

    #60150
    Alicia
    Participant

    I had mets in several organs, all of these were surgically removed except for the 2 brain mets, these were treated with srs. Best of luck to your wife!

    #60151
    Nan
    Participant

    Do NOT stop getting scans. There are folks who have had melanoma show up 20+ years later. Be vigilant!

    Nan

    #60152
    lizliz
    Participant

    I am NED over 4 years now after lung met removed via surgical lobectomy. I have CT scans of the head/neck/chest/pelvis every 3 months and brain MRI every 6 mos. I am not sure how long this will continue and if it should ever stop.

Viewing 5 posts - 1 through 5 (of 5 total)
  • The forum ‘Melanoma Diagnosis: Stage IV’ is closed to new topics and replies.