Home Forums Melanoma: Newly Diagnosed – Stages I & II Strong family history of melanoma, report confusing

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  • #22009
    nybride710
    Participant

    I am writing on behalf of my husband, who has not officially been diagnosed, and if I am interpreting correctly, does not have melanoma at this time. I am really confused, however. First, let me give a little background. He has the genetic disorder neurofibromatosis (NF), as does or did 3 other people in his family. Basically, he has dozens of benign tumors on his skin already due to the NF. It doesn’t cause skin cancer, but it greatly increases the risk. His father died of melanoma in 1989. One of his two brothers died in 2012 of an internal tumor caused by the NF. Because of this, we go to a NF specialist annually. In January, she diagnosed a basal cell carcinoma on his forehead. He had it removed in February.

    About two weeks ago, I was putting bengay on his back and noticed 3 spots that really concerned me. He had them biopsied last Tuesday and we got the results today. He also had a new spot on his forehead. The 4 diagnosis are:

    1. Nevus Pigmentous, Intradermal (this one was benign)

    2. Compound Nevus with severe dysplasia, fibrosis and inflammation (recommended removal)

    3. Compound Nevus with moderate displaysia (recommended removal)

    4. Squamous Cell Carcinoma, Invasive (not sure of the treatment)

    This means no melanoma, right? I am so anxious due to his family history and age. He is 50. His father and brother were 59 and 53 when they died. We don’t go in to discuss the results for another 9 days. Are #2 and #3 skin cancer at all? The report does say they want to remove it and study it further. I would appreciate any guidance you can give us. We celebrate our 4th wedding anniversary next month.

    Thank you,

    Lisa

    #64608
    Catherine Poole
    Keymaster

    The squamous cell may be the lesion of most concern, but usually can be removed by MOHS surgery or other. The specialist should be talking to you about the findings. Are you at a teaching hospital where they do have someone with knowledge of this condition?

    #64609
    nybride710
    Participant

    We have an appt on June 11 to discuss the results. He will be getting a full body scan at that time. They recommend that he have one every 6 months. Thanks so much.

    #64610
    Catherine Poole
    Keymaster

    Are you seeing a specialist? At a teaching institution?

    #64611
    nybride710
    Participant

    Hi, no, we’re just seeing a dermatologist at this point. He had the two pre-cancers removed already and will have another Mohs procedure tomorrow for the squamous cell. They took another 4 biopsies at his most recent appointment and also found a lot of pre-cancer on his forehead, ears, and hands.

    We do see a neurofibromatosis specialist annually at the Mayo Clinic in Rochester, Minnesota, a few hours from our home. We may change our course of action when we get the next set of biopsy results back.

    Thanks again.

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