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June 28, 2012 at 9:59 pm #20417MandiParticipant
Hi all, I have stage IV Meanoma and have just started a course of Dacarbazine.. Do any of you know if it’s safe to take Milk Thistle while having chemo? It has great liver healing properties and the research I’ve carried out seems to be mixed some saying it helps the chemo and others saying the opposite..
Thanks in advance
Mandi (Uk)June 28, 2012 at 10:22 pm #55107
I’ve seen no scientific evidence of this doing anything for melanoma.June 30, 2012 at 3:09 pm #55108zephyr66Participant Hi… True, there isn’t a lot of scientific evidence for any of the alternative treatments and partly that’s because it’s hard to control variables for people on alternative treatments and because studies aren’t widely conducted – that’s what i’ve read. from a personal perspective, i believe in the alternative approach in combination with the conventional treatment. my partner has being doing a mexico based alternative cancer treatment for 7 months while doing the conventional. her side effects were minimal for zelboraf and IPI and we just found out she is virtually NED – with one more CAT scan confirming this in 6 weeks. The proof for us was talking to the people who have been going to the clinic in Mexico for years and having remained cancer free after being told they would not survive. I’m not saying it works for everyone, but there has been a lot of success. I”m also not saying it’s better or a replacement for conventional treatment. But, I put a lot of stock and praise in alternative treatments and I’ve also been meeting more nurses and health care professionals who are starting to think the same.
SylviaJune 30, 2012 at 9:28 pm #55109
I guess I would be more of a believer Sylvia if there wasn’t such profit motive involved and if there was a good reason the treatment in Mexico was not available in the U.S. I realize it is hard to get drugs past the scrutiny of the FDA but when there is proof that an agent has worked in a large amount of folks it is fasttracked. There are some scientifically based sites that discuss all of the alternative therapies and cautionary notes about how they may interfere with traditional therapy. My main concern is that you let your doctor know you are taking something alternative so they can be aware of any interactions,etc. I have an open mind but I also want folks to have a realistic picture of alternative therapies. I will look up those sites on alternative therapies and post here soon.June 30, 2012 at 10:10 pm #55110zephyr66Participant Hi Catherine,
I understand your point… but alternative medicine is not a friend of the pharmaceuticals which is why the FDA continues to attempt to regulate and control the herbs and supplements of this country. Most of the alternative treatments were in this country at one point but they were driven out by the FDA. the center we go to was started in the USA in the 1950’s. Yes, there is no profit for pharmaceutical companies for folks to do alternative treatments unless they control and regulate it. I know you don’t want this forum to be a place to discuss this, so I won’t post any more on this subject. One thing I don’t understand though is since the survival rate is so very low with late stage cancers in this country with conventional medicine, I don’t see how they talk about alternative treatments “not working”. Because in all seriousness, conventional treatments largely don’t work either if you want to look at statistics. But, it’s a very personal and individual path and everyone has to look at what they want. I know for us, it’s a very integrative approach that makes sense… conventional medicine, alternative medicine, organic foods only, no processed food, our own well water and rest, pets, nature, prayer and spirituality.
SylviaJune 30, 2012 at 11:12 pm #55111
I respectfully disagree Sylvia. The FDA has no profit incentive, they are charged with keeping our drugs safe and effective and prevent us from spending our dollars on “snake oil.” The pharma industry would absolutely love to find an alternative medicine that works for cancer, they are very profit motivated and if they could, would take such a substance and make a mint. But the folks who provide these alternative medicines and therapies are very profit motivated too. They are providing things that aren’t scientifically proven to folks who are quite desperate to try anything. Sometimes the alternatives can collide with the traditional and that’s why I always recommend you speak with your doctor about any medicine you might be taking. Anyway, we are all on the same side here, we all want a cure for melanoma, believe me!
Here is a good article by NCI on alternative medicine:
http://www.cancer.gov/cancertopics/camJuly 8, 2012 at 12:37 am #55112bettinParticipant Hi Mandy,
I have no opinion on milk thistle- you could check one of the books on herbal medicines and interactions, Foyles has a very good one in case you’re in London- but why are you on DTIC?
Is this the first-line treatment to get on to Ipi? Do you have any options to go on targeted therapy? And are you seen by a Melanoma specialist?
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