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October 9, 2012 at 3:24 am #20675
Hi, everyone. Well, despite five appointments with specialists a few weeks ago, I ended up having three bioposies today. Basically, it was time for my monthly with mmy skin cancer doc, and I relayed what the specialist at Cancer Care Alliance told me (i.e., that there are differing opinions as to whether moderately to severely dysplastic nevi have a more likely chance of morphing into melanoma and that it’s not always obvious to the naked eye when they do). Therefore, I asked her to extend my appointments once every three months in order to direclty compare my exisitng moles with the grid photographs taken after my first melanoma was discoverd two years ago. She decided to start immediately, and upon viewing my skin next to each photograph, she noted three spots that weren’t there before. One is on my right arm, one near my left breast, and one on my back). She decided to do shave biopsies on all three as opposed to punches, which I’ve had on all the others before. I expect the results back within a week. All I can do is hope that if, in fact there’s a serious problem, that we’ve caught it before it has spread. This whole experience is remarkable. I wish they’d find a cure for this damn disease… and for so many others that are far worse. Thinking good thoughts and sending best wishes to you all, LisaOctober 9, 2012 at 1:25 pm #56882 Good luck, and I hope everything comes back benign for you.
I go next week for my “mole patrol” and I hope I don’t need any biopsies.October 9, 2012 at 1:30 pm #56883
Good luck to you as well. I’ll be sending good thoughts your way! L.October 9, 2012 at 3:51 pm #56884LaurieParticipant Lisa P,
Here’s to all three biopsies coming back with no evidence of cancer. Please let us know how you make out. Will be keeping you in good thoughts!October 9, 2012 at 3:54 pm #56885
Thanks, Lisa!October 9, 2012 at 6:49 pm #56886toastwaveParticipant Hi Lisa,
Good luck with all of these. Hopefully they are fine. And, at least you are being monitored so carefully that it is likely you caught everything early. Going in next week for my 3-month check and stress/anxiety is running high (as usual right before the appointment!). They are now photo tracking 5 moles on me and one has almost doubled in size this last week so I know it’s coming out. Ugh. I hope the therapy helps keep the anxiety down between check-ups. Also, I hope you are enjoying our life in between. That’s the challenge for us. Good luck to you too, Jenni.
ScarlettOctober 9, 2012 at 7:16 pm #56887
Hey, Scarlett – Best of luck on your appointment and do let us know how it goes. Does your regular derm take photos and track them or do you go to a specialist for that? There’s a Dr. Argeny here in Seattle who is known specifically for his photography work when it comes to skin cancers. The interesting thing is that I got a clean bill of health from my visit with him and the melanoma specialist a few weeks ago, but that’s because they weren’t comparing existing spots against my older grid photography. I guess the new marks look like boring old moles or freckels. Anyway, fingers crossed and talk soon, L.October 9, 2012 at 7:18 pm #56888cohanjaParticipant I had photos taken about a year ago but no dermatologist has ever used them when looking at me. They just look at my pigmented lesions and if anything looks suspicious they remove it, but I’m the only one ever looking at the photos sometimes to confirm if something was there a year ago.October 9, 2012 at 7:32 pm #56889 I had to ask my doc to do a comparison.October 9, 2012 at 9:05 pm #56890 I also had pictures taken last year. I was given a dvd with the pictures, and the other dvd was given to my derm. She uses it every time to compare the pics vs. my body. It really helps in looking for the changed/new moles.October 9, 2012 at 10:06 pm #56891Catherine PooleKeymaster Absolutely, it was Wallace Clark who first discovered that photography was the best way to follow anyone with many moles, especially dysplastic, and an important tool for the doctor to use. What doctor actually remembers one person’s moles and how they looked previously compared to another person. They would be pretty amazing to be able to do that. I would urge you to have your docs use the photos for comparison before doing biopsies.October 10, 2012 at 11:11 am #56892WorrywartParticipant Good luck! I still get new moles and so far, all the new ones I have had biopsied have been benign. Wishing the same for you!October 11, 2012 at 6:26 pm #56893JenniParticipant Hi LIsa,
Praying you get good results! I have had a few new ones pop up in the last 3 yrs or so and I have taken them off and all of them were just atypical (most mild I think).
Hopefully after these you can have a break from biopsies you have had quite a few!
JenniOctober 11, 2012 at 9:23 pm #56894toastwaveParticipant
I go to the same practice as you and saw Dr. A once. He removed a spot on my old WLE and a lump underneath it (yikes!) but it turned out to be a bening granuloma from the stitches a year before. My regulard doc is awesome. She photographs all of the “odd” ones and follows them. They are tagged and identified in my file and she always compares the mole and the photos when I go in. If something is odd+ she takes it out without hesitation. You might want to check her out. Dr. Newman.October 19, 2012 at 2:45 am #56895
Hi, everyone. Well, the good news is that two out of the three biopsies were benign and nothing to worry about. The third one, which was very close to a previous excision on my back, came back as moderately dysplastic and, therefore, needs to be removed. I’ll go in next Wednesday to have that done. In the meantime, I had a friend of mine photograph the spot where the biopsy was done and, as luck would have it, noticed another spot nearby that I don’t like the looks of. I’ll talk to my doc about it when I go in for the excision to see if we need to biopsy that. Yegads! I know there are differing opinions about moderately dysplastic nevi in terms of whether to excise them or not and am very intersted in hearing your thoughts and experiences. In the meantime, I’m begining to believe that every single spot on my back is at least moderately abnormal (that’s how all have come back so far). Should I demand that all of them be removed, or simply keep doing what I’m doing (getting checked so frequently), which seems to result in a new procedure/stitches every month or so. It’s hard to know what’s best as there are so many differing opinions regarding this issue. Thanks and take good care out there! Lisa
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