Home Forums Melanoma Diagnosis: Stage IV Virotherapy and Latvian drug Rigvir – very much needed infor

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  • #21619
    Pobeda
    Participant

    Hello, I’m from Russia, my mother melanoma with multiple MTS, was Zelboraf 5 months, then in research Dabrafenib 4 months, but 2 months ago began to increase metastasis of studies excluded, unfortunately, Russia still has not given permission to conduct research Nivolumab, perhaps they begin in February 2014, but it’s not exactly, I don’t want to lose time. I need information about the drug Rigvir is viroteraphi, invented in Latvia, share information about him good reviews on the site, but for some reason I have doubts about its effectiveness. Help information please!

    #62699
    Linny
    Participant

    Hello Pobeda,

    Unfortunately there isn’t much information here in the US about Rigvir. On the web you’ll find both positive and negative information and it’s all very confusing. I did some research not too long ago for someone on this forum and found a link to a study in Russian that was done on Rigvir. Here is the link to that study. Perhaps it can help:

    http://www.virotherapy.eu/wp-content/uploads/2012/10/result.pdf” class=”bbcode_url”>http://www.virotherapy.eu/wp-content/uploads/2012/10/result.pdf

    There are some interviews on Youtube about patients who have done treatment with Rigvir. Some appear to be in Russian.

    I can understand you having some doubts about it. But if you’re close to Riga, it may not hurt to visit the clinic to hear what they have to say. Since my husband was born in Latvia and speaks the language fluently, I’ve been tempted to visit them myself to hear what they have to say. But it’s a little far from the US.

    Have you tried searching in Estonia or Finland to see if anyone there is researching nivomulab?

    #62700
    Pobeda
    Participant

    Thank you for the information, I will continue to study the issue Rigvira turns out they have an office in Russia, yesterday I gave the phone the person who receives it, will be with him sogvanivatsya. Concerning nivolumab unfortunately Russian citizens do not want to take in research in Europe, and an opportunity to ride every month in a European country we do not have! We hope that our ministry of health will permit the company to conduct research nivolumab Bristol in our country!

    #62701
    Catherine Poole
    Keymaster

    I have many trial listings for Finland and Germany, Czech Republic also. This would be for PD-1 and possibly IPI access. I do not know of the drug you mention, but would aim towards those with the most research behind them. You can write me personally for a list of institutions in these countries. I have also reached out to a pharma rep in Russia for information.

    #62702
    Pobeda
    Participant

    Thank you, we would like to try to get into the study nivolumab of Bristol!

    #62703
    Catherine Poole
    Keymaster

    There is ongoing Yervoy extended access program in Russia (in Moscow and in Saint Petersburg).

    it is possible to call to Dr. Kharkevich Galina Yurievna +7495 324-12-65. She is responsible for this program. You might be considered for participation if meets the inclusion criteria.

    #62704
    Linny
    Participant

    Pobeda wrote:

    Thank you, we would like to try to get into the study nivolumab of Bristol!

    Best wishes to your mother, Pobeda. I hope that everything works out well for her.

    #62705
    Catherine Poole
    Keymaster

    Do you mean this trial: http://clinicaltrials.gov/ct2/show/study/NCT01844505?term=nivolumab+Bristol&rank=3&show_locs=Y#locn

    I don’t see a Bristol (UK) location. But you can contact Bristol Myers Squibb Trail Connect folks for locations.

    #62706
    Pobeda
    Participant

    Catherine, thank you for the information, with Kharkevich I contacted unfortunately Mama don’t take the access to ipilimumab, she already developed ascites!

    #62707
    Catherine Poole
    Keymaster

    I’m sorry to hear that. Does that disqualify her?

    #62708
    Pobeda
    Participant

    Yes, unfortunately it will not take in the programme and in the research nivolumab also take

    #62709
    Latvian
    Participant

    The person who invented the Rigvir already 40 years ago is well known in Latvia and the therapy is very effective. That’s a shame so little people know about that

    http://www.viroterapija.lv/latvian_virotherapy_center_en.html

    #62710
    Pobeda
    Participant

    Information about Rigvir lot, only specific data about its effectiveness, its praise, but there is no proof, if it is so good, why not use it in other countries. Now there are many liars, so I start doubting its efficiency!

    #62711
    Latvian
    Participant

    I guess one of the reasons could be the fact that the scientist who invented the medicine does not want to sell the patent and want’ s to keep it “latvian” for patriotic reasons.

    I can’t judge about effectiveness myself (thanks God) but this definitely is not a scam.

    #62712
    Pobeda
    Participant

    Thank you all for the support, but on October 30 my mom died for our family it was a great surprise, we think we are still a long fight, but found that her heart has accumulated liquid and heart failed! I put all my soul I hate melanoma, and what she did come up with this medication. My mom was only 50 years! I wish all the patience and strength to fight!

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