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October 10, 2013 at 5:36 am #21619
Hello, I’m from Russia, my mother melanoma with multiple MTS, was Zelboraf 5 months, then in research Dabrafenib 4 months, but 2 months ago began to increase metastasis of studies excluded, unfortunately, Russia still has not given permission to conduct research Nivolumab, perhaps they begin in February 2014, but it’s not exactly, I don’t want to lose time. I need information about the drug Rigvir is viroteraphi, invented in Latvia, share information about him good reviews on the site, but for some reason I have doubts about its effectiveness. Help information please!October 11, 2013 at 3:19 am #62699LinnyParticipant Hello Pobeda,
Unfortunately there isn’t much information here in the US about Rigvir. On the web you’ll find both positive and negative information and it’s all very confusing. I did some research not too long ago for someone on this forum and found a link to a study in Russian that was done on Rigvir. Here is the link to that study. Perhaps it can help:
I can understand you having some doubts about it. But if you’re close to Riga, it may not hurt to visit the clinic to hear what they have to say. Since my husband was born in Latvia and speaks the language fluently, I’ve been tempted to visit them myself to hear what they have to say. But it’s a little far from the US.
Have you tried searching in Estonia or Finland to see if anyone there is researching nivomulab?October 11, 2013 at 8:37 am #62700
Thank you for the information, I will continue to study the issue Rigvira turns out they have an office in Russia, yesterday I gave the phone the person who receives it, will be with him sogvanivatsya. Concerning nivolumab unfortunately Russian citizens do not want to take in research in Europe, and an opportunity to ride every month in a European country we do not have! We hope that our ministry of health will permit the company to conduct research nivolumab Bristol in our country!October 11, 2013 at 2:33 pm #62701 I have many trial listings for Finland and Germany, Czech Republic also. This would be for PD-1 and possibly IPI access. I do not know of the drug you mention, but would aim towards those with the most research behind them. You can write me personally for a list of institutions in these countries. I have also reached out to a pharma rep in Russia for information.October 16, 2013 at 7:25 am #62702 Thank you, we would like to try to get into the study nivolumab of Bristol!October 16, 2013 at 5:17 pm #62703 There is ongoing Yervoy extended access program in Russia (in Moscow and in Saint Petersburg).
it is possible to call to Dr. Kharkevich Galina Yurievna +7495 324-12-65. She is responsible for this program. You might be considered for participation if meets the inclusion criteria.October 18, 2013 at 3:02 pm #62704LinnyParticipantPobeda wrote:
Thank you, we would like to try to get into the study nivolumab of Bristol!
Best wishes to your mother, Pobeda. I hope that everything works out well for her.October 18, 2013 at 5:10 pm #62705
I don’t see a Bristol (UK) location. But you can contact Bristol Myers Squibb Trail Connect folks for locations.October 22, 2013 at 1:47 pm #62706
Catherine, thank you for the information, with Kharkevich I contacted unfortunately Mama don’t take the access to ipilimumab, she already developed ascites!October 22, 2013 at 2:31 pm #62707 I’m sorry to hear that. Does that disqualify her?October 23, 2013 at 12:11 pm #62708 Yes, unfortunately it will not take in the programme and in the research nivolumab also takeOctober 24, 2013 at 9:56 pm #62709LatvianParticipant The person who invented the Rigvir already 40 years ago is well known in Latvia and the therapy is very effective. That’s a shame so little people know about thatOctober 25, 2013 at 5:21 am #62710 Information about Rigvir lot, only specific data about its effectiveness, its praise, but there is no proof, if it is so good, why not use it in other countries. Now there are many liars, so I start doubting its efficiency!October 25, 2013 at 7:29 am #62711LatvianParticipant I guess one of the reasons could be the fact that the scientist who invented the medicine does not want to sell the patent and want’ s to keep it “latvian” for patriotic reasons.
I can’t judge about effectiveness myself (thanks God) but this definitely is not a scam.November 12, 2013 at 10:40 am #62712
Thank you all for the support, but on October 30 my mom died for our family it was a great surprise, we think we are still a long fight, but found that her heart has accumulated liquid and heart failed! I put all my soul I hate melanoma, and what she did come up with this medication. My mom was only 50 years! I wish all the patience and strength to fight!
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