Home Forums Melanoma Diagnosis: Stage IV What to do?

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  • #21039
    rubin
    Participant

    I had an initial melanoma in my shoulder, Breslow 0.4, Clark 2 with regression.

    Was submited in June 2011 to an enlargement skin ressection and sentinel limphonode exeresis, that came clear in the patology.

    Now my doctor asked for a lot of exams due to 6 lb weight loss and an abdominal pain that I had during two months 5 moths ago. I´m assymptomatic right now. I had my first Torax CT done last week, with 3 nodules of 3mm. each.

    I am terrified about the possibility of metastasis. Just have my first baby recently.

    Those nodules are so small for biopsy, but I can´t just wait….

    I´m 31 years old and no smoker.

    I would be glad for some opinion.

    Sorry for my English.

    #59292
    Catherine Poole
    Keymaster

    Your English is fine. Where do you live? Perhaps you should have a melanoma specialist look you over. The nodules are in your stomach? Where was your melanoma lesion?

    #59293
    rubin
    Participant

    Thank you for tour reply.

    I’m from Brazil.

    I had a skin melanoma in my right shoulder. The correct stage was clark II and Breslow 0.4mm with regression.

    Now I’ve 3 lung nodules of 0.3mm each.

    My melanoma specialist doc. Told me to wait and repeat Chest CT in 3 months.

    #59294
    NicholasChupp
    Participant

    0.3mm is extremely small and could be a number of things other than Melanoma. It is not uncommon for your lungs to have benign lesions such as Hamartomas, Bronchial adenomas, hemangiomas etc. For example I had Melanoma (0.2mm) on my back in September 2011. I recently had a scan done which showed three lesions in my liver 0.7mm, 1.4cm and 1.4cm. The GI and Oncologist I have visited both refused to biopsy them at that size because they are small and could cause internal bleeding if it is hemangiomas. The radiologist for the CT scan and the MRI did diagnose the lesions as Hemangioma. Due to having Melanoma in the past I am setting up an appointment with a Melanoma specialist just to be safe.

    I wouldn’t stress over it too much at this time. I would seek advise from a Melanoma Oncologist though. I also am young (28) and have a 3 year old daughter. I know your pain and stress all too much. Best of luck to you!

    #59295
    cohanja
    Participant

    I had similar pathology to NicholasChupp, and last year I had CXR followed by CT because I had granulomas in my lung.

    #59296
    rubin
    Participant

    Thank you for your attention.

    It is great to know how common it can be some alterations on those scanning tests that are benign.

    Today I received my skull MR results with a small lesion without edema with absortion blood. My oncologist referred me to a neurologist, but said that probably is a benign lesion.

    Today I checked and lose more 2 pounds, in total 8 in less than 5 months.

    Too much probable benign things but all together are driving me worried!

    #59297
    Catherine Poole
    Keymaster

    Are you losing weight because of stress? It really seems like you are having a lot of testing that may not be necessary. Why did they do an MRI of your brain? Your melanoma was very low risk. Do you have to pay out of pocket for all of these tests?

    #59298
    rubin
    Participant

    I was not with stress since those hipothesis just came 2 weeks ago.

    My oncologist asked for those tests because the general doctor referred to him since I started with some symptoms as an intermitent pain in my left hypochondrium during 2 months (started 5 moths ago) and lost of weight. My blood was clear, except eosinophils that was in the first test 35%. Now is stable around 9%. Don´t you think those tests were necessary?

    I always take vermifuge semiannually.

    I will just wait and repeat those tests in 3 moths.

    #59299
    cohanja
    Participant

    try to make sure with your medical team with all these CT scans that they are trying as much as possible to use as little radiation as possible to get the test done, and keeping track of your total cumulative radiation exposures/dose. i really hope all of this is a false positive, which from what my Dr tells me often happens when they start scanning Stage I patients, which is why they typicall don’t

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