Home Forums Melanoma Diagnosis: Stages I &II Worried that I have a recurrence

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  • #20622
    bon15
    Participant

    A few days ago I noticed a raised skin coloured lump on the underside of my right foot, near the ball of my foot. It is about 1 cm across. I visited my GP today who doesn’t think it is anything to do with my melanoma (stage 1a diagnosed 7 months ago, 0.72mm breslow on my lower left thigh near the knee with zero mitosis and invasive radial growth phase even though “superficial” Clark level 4 ), seemingly on the basis that it seems not to be attached to the tendons etc. He thought it could be a ganglion or something to do with the tendon sheaths.

    Now I’ve done some research on the internet, however, I’ve gone into meltdown as it seems it could be a subcutaneous metastic melanoma and would therefore be a recurrence and fast forward me to stage 4. I’m not sure that my GP has enough knowledge about melanoma to even know about such a recurrence.

    I am pulling forward my 3 monthly follow up with my consultant dermatologist to this Thursday but, in the meantime, any words of reassurance would be greatly appreciated as I am falling apart.

    #56470
    Worrywart
    Participant

    Odds are it has NOTHING to do with your melanoma. After all, why would a melanoma on your left thigh spread to your right foot? That really does not make that much sense! My husband has a ganglion cyst on his ankle. His varies in size. do you have a picture of it?

    #56471
    bon15
    Participant

    Thanks Worrywart.

    It looks like a mosquito bite/ bee sting (although it’s neither) and is painless. Regarding it being on the other side of my body, yes, it’s not a local recurrence but I have read that you can get distant recurrences anywhere on your body regardless of where the primary site was. This is why I am so worried that it’s a recurrence.

    #56472
    bon15
    Participant

    This is an extract from a website I found and also the skin is one of the most common sites for distant metastasis:

    Metastases appeared as small, discrete rounded densities in the subcutaneous fat; lesions were occasionally subtle because of their small size and peripheral location. The location of subcutaneous nodules could not be predicted consistently on the basis of the site of the primary malignancy. We conclude that subcutaneous metastases are common with melanoma in patients with Clark level IV or V lesions.

    #56473
    wpatterson4
    Participant

    Try not to panic until you know what it is. As Worrywart said, it probably doesn’t have anything to do with your melanoma. We all go through these episodes from time to time. Hell, I can only remember a few times after my diagnosis that I was NOT worried about something on my body being metastatic melanoma. I’m going through it right now.

    How long ago was your diagnosis?

    #56474
    bon15
    Participant

    Seven months ago.

    #56475
    Worrywart
    Participant

    I totally understand your concern. I just spent 12 days worried about a red bump on my leg..thinking it was some rare cancer and/or a melanoma metastasis. It was a cyst that ruptured and a granuloma formed around it. It was red and raised and I watched it for months. how long have you had this bump? I have a rule. If something is worrying me, I put a note on my calendar for 2 weeks, then I stick a bandaid on it and don’t look at it for two weeks. Odds are it’ll go away in that time. Maybe it is just a bite? That is the most logical explanation. If it is worrying you, give you GP a call back, go in tomorrow, and have it removed for biopsy.

    #56476
    Catherine Poole
    Keymaster

    Melanoma tends to move up the body, not down, and the subcutaneous mets you mention happen largely in folks with metastatic disease in other parts of their bodies. VERY very unlikely to be related. Subcutaneous mets also are black usually.

    ‘So please stop the internet search and have your doctor check it out. And let us know how it goes.

    #56477
    bon15
    Participant

    Thanks Catherine and everyone else for the words of reassurance. I’ve calmed down a bit but every now and then feel totally overwhelmed with the worry of it all. I’ve always been a very anxious person and the more I learn about the unpredictability of melanoma, the more I live my life in a constant state of waiting for the axe to fall. I just can’t see me ever getting to a day when I don’t constantly think about melanoma.

    Anyway, the lump is very real which doesn’t help matters and I’ll let you know how I got on after tomorrow’s appointment.

    #56478
    wpatterson4
    Participant

    “I just can’t see me ever getting to a day when I don’t constantly think about melanoma.”

    You’re certainly not unique in that regard.

    #56479
    goldengirl2011
    Participant

    Good luck, and do keep us posted. It’s only been 7 months since you were first diagnosed. It does take time to “calm down” and not think of melanoma 24/7. I was diagnosed 1 1/2 years ago as stage 1a, and I still have my moments – but it doesn’t consume it like it used to. As so many others have said, in time things really do get better!

    Cathy

    #56480
    Worrywart
    Participant

    I am 4 yrs out and I seem to only think of it around summertime, when I was diagnosed. I associate the sun and that time of year with danger and fear. It does get better with time. I have been totally convinced I have something sinister only to be proven wrong by pathology, so just know that it is normal to think the worst after a cancer dx. Before the cancer dx I did not think that things like that would happen TO ME, just to other people. I think that is part of what drives the fear, we realize that things do happen. BUT, with that said, I am willing to bet anything that your lump is benign.

    #56481
    Gloria
    Participant

    You are doing the right thing by having a dermatologist take a look at it. I know it is hard to not worry. I do it all the time when I find a new “spot”. I immediately think the worst. I go in to see the derm. to find out that it is nothing. Then I think all that worry for nothing. I’m going to try harder next time to not worry so much. I hope you can, too. Please keep us posted.

    #56482
    bon15
    Participant

    Just a quick update. Went to see my consultant dermatologist at hospital who said it was extremely unlikely to be anything to do with my melanoma. It is a subcutaneous lump, however, and as he has no idea what has caused it he has referred me to a foot specialist who I am seeing next Wednesday. Still worrying non-stop, do not get any scans with stage 1a in the UK nor are you able to have an SLNB so for all I know it has spread. Five more days of worry and probably more after that if it has to be cut out and biopsied, which is probable if the foot specialist cannot identify it straight away.

    #56483
    Worrywart
    Participant

    Try to think positive! I know it’s hard though, esp once we get into a worry state of mind. Benign lumps and bumps are very common on all people, it doesn’t have to be melanoma and it is highly unlikely to be. Can’t wait to read your good results!

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