Home Forums Melanoma Diagnosis: Stage IV Yervoy 2nd dose

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  • #21321
    msue5
    Participant

    All my neuropathy symptoms have been gone since 2nd day of Prednisone. I have been tapering down from the prednisone slowly but saw Oncologist today and I will be tapering faster than planned. This will make me eligible for 2nd dose on Monday June 3. He advised me that BMS said 1 more adverse event is all they will allow me. Normal side effects are acceptable but due to Lupus at the 1st sign of autoimmune event and I will have to go off. I am relieved to be starting again. I will still get bloodwork weekly to monitor. My family and I are participating in the local Relay for life this weekend. The infusion clinic invites all the patients to a reception before the event. They are a special group of nurses that love their job and their patients.

    Mary Sue

    #60979
    msue5
    Participant

    Found out today that my Yervoy 2nd infusion might not be till Wed instead of Monday. It had to do with dispensing pharmacy.My first was 4/22 then on hold for neuropathy and Prednisone. For some reason this 2 day delay made me break down. I first became stage 4 in Oct with thoracic nodes mets which I had 2 unsuccessful resections done and Cyberknife but there was progression at 6 wks and more mets in neck and lt rib and rt axillary. All visible nodes are very enlarged from 1st Yervoy and still enlarging 5 wks later. I just feel like a ticking time bomb. Haven’t had scans since Feb so I don’t know what else is going on inside but the Yervoy inflammed nodes that weren’t measurable on Feb scans. Sometimes its the little things like a 2 day delay that make me lose it. Ok I feel better now!

    Mary Sue

    #60980
    Celeste Morris
    Participant

    Don’t despair, Mary Sue…even though you would be completely entitled it you did!! Hang in there. You know that ipi often has a delayed response and causes an inflammatory reaction before eradicating those tumors! You got this!!! Hurry up Wednesday. I understand. C

    #60981
    dkmc
    Participant

    Mary Sue- hang in there…it is the little things-like a delay that can really be “the straw that broke the camels back” I am hoping IPI will work its magic…but the waiting stinks…oh how I hate waiting! Karen

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