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Viewing 15 posts - 1 through 15 (of 10,279 total)
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  • in reply to: Recently Diagnosed and Traumatized #71264
    Catherine Poole
    Keymaster

    Please ignore all spam and do email us if you have an issue that you would like help with. We are closing the forum to new posts due to spam issues. Thanks for your understanding. Catherine Poole

    in reply to: Relapse IV 2013 – Ipilimumab #71252
    Catherine Poole
    Keymaster

    Diana,
    I hope you respond to the pembro! It can be amazing in the response for some people. I must tell you this forum will shut down permanently soon as the spam and related changes have made it too difficult. I am ALWAYS available by email: cpoole@melanomainternational.org. please keep in touch! Our foundation is smaller now but mighty in our mission. Hoping to continue to hear from all.

    in reply to: my rechallenge #71224
    Catherine Poole
    Keymaster

    Jim,
    Sounds like you have your priorities lined up. Quality of life is so vital. I’m sorry you have had such a rough time with the BRAF drugs. I am hoping you have a long remission! Please stay in touch. You can also email me personally, cpoole@melanomainternational.org. Best wishes

    in reply to: Little anxious #71221
    Catherine Poole
    Keymaster

    Sorry for the delay. I hope you have some results by now. It is hard to guess what the lump might be. It doesn’t sound like a lymph node problem. But only further tests can rule out what is going on. A leg lesion has the lowest risk, so hopefully this will not be a further problem. Feel free to email me personally: cpoole@melanomainternational.org
    Best wishes to you

    in reply to: Newly Diagnosed and So Scared #71213
    Catherine Poole
    Keymaster

    The best way to follow moles for you and your derm is to take photography of them. Memory can be deceiving but photos can show any change. Don’t forget to breathe when you feel anxious. Good luck!

    in reply to: Newly Diagnosed and So Scared #71211
    Catherine Poole
    Keymaster

    I had a similar prognosis and wished for 100% but as we know nothing is a guarantee in life and the SLNB isn’t as touted as it once was. It does leave you with some debilitating side effects too. Uncertainty is part of it. Meditation is also a helpful tool. The mitotic rate is important and yours is excellent, meaning the cells were not active. Go for your check ups and watch for changes. Try to live in the good moments. You can email me privately too: cpoole@melanomainternational.org Be well! Catherine Poole

    in reply to: Newly Diagnosed and So Scared #71209
    Catherine Poole
    Keymaster

    I too felt your anxiety with a .76, Clark IV which has no relevence, VGP, etc. I didn’t have a SLNB and that was 31 years ago. It sound like they caught it early and don’t feel this is necessary. Was there a mitotic rate? That can be relevant to prognosis. I would make sure you have whole body photography to follow your moles properly. Look for any change in your moles. Counseling and pershaps antianxiety meds might help you get through this initial time. Breathe deeply. sorry for the delay in answering you.

    Catherine Poole President/MIF

    in reply to: Should I see my dr.? #71205
    Catherine Poole
    Keymaster

    It all sounds good! I’m happy you have a good report from the doctor. Take care.

    Catherine Poole, President and founder

    in reply to: Should I see my dr.? #71199
    Catherine Poole
    Keymaster

    I wouldn’t worry about bothering the doctor. You probably can have a televisit with the doctor and they can look at the lesion. Better be safe with this! But don’t use google to supply your answer. Let us know how things go.

    Catherine Poole President/founder MIF

    in reply to: Coronavirus #71189
    Catherine Poole
    Keymaster

    So now we have a pandemic and our lives have changed dramatically. Treatment modalities may have shifted in your community. Here are the current guidelines:
    This is what we follow now: https://www.nccn.org/members/committees/bestpractices/files/MGH_covid19_Early%20Melanoma%20Patients_3.17.20.pdf

    Feel free to email me if you have questions BE WELL Stay home

    Catherine Poole, President/founder

    Catherine Poole
    Keymaster
    in reply to: GOOD NEWS!~ #71179
    Catherine Poole
    Keymaster

    So happy this happened to the melanoma world just about put me out of work, and that’s a good thing! Take good care Dick!

    in reply to: Lung Issues- Really Worried #71169
    Catherine Poole
    Keymaster

    Jeff thanks for asking. I’m in touch with this patient and sadly she is in the hospital. It appears her lung issues are not related to the melanoma but potentially something else serious. Please send your good wishes and prayers to her.

    in reply to: What Do you think of the New Forum Platform? #71165
    Catherine Poole
    Keymaster

    Thank you! I didn’t have a choice on the format, sorry, it had to be updated. And so far the spam is thinner. Stay healthy all of you!

    in reply to: Lung Issues- Really Worried #71149
    Catherine Poole
    Keymaster

    Sorry to hear this. Although not easy, try not to jump to conclusions of the worst case scenario. Night sweats can be attributed to a lot of things, including hormonal changes, too much bedding, etc. A CT scan might put your mind at ease. Let us know again how you are doing. Feel free to write me personally at cpoole@melanomainternational.org

Viewing 15 posts - 1 through 15 (of 10,279 total)