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  • in reply to: Been a few weeks #55426
    chrisjax
    Participant

    Hey all,

    Recovery after surgery is going really well. Was back at work the Monday after and have been good since. Feeling a lot better with the clear outcome. The only question that I had was that I have a lump right by where they took the 3 lymphs from and was wondering if that is normal and how long it lasts if any of you have and this. It seems to be getting larger over the last few days is 2.2 by 3.1cm single lump. The surgery was 10 days ago and it is not painful and i don’t have a fever so I doubt that it would be an infection or anything too crazy but wanted to check. Thank you.

    Chris

    in reply to: Been a few weeks #55424
    chrisjax
    Participant

    Came back clean :D

    in reply to: Been a few weeks #55422
    chrisjax
    Participant

    Had the surgery yesterday morning. The idea of working today was a pipe dream. No real pain or anything but the pills keep me asleep most of the day (I don’t have any tolerance for pills. Last year took a Benadryl and sleep from 10am till after 8). This was one of my first surgeries so I have no real comparison but I woke up and was in a good amount of pain the first day very localized to the wound. But it was almost completely gone when I woke up this morning.

    Will be back at work on Monday though. They took 3 nodes I think. I was pretty out of it in post op. I will update after I get results. The cool thing they did is close with some glue so I don’t have to have stitches out in two weeks.

    You were not joking about the Mayo’s professionalism. The way that they move you through the different departments and get things done is like a watch.

    I do enjoy running and the doc said I needed to lay off it for a 2-4 weeks. The nodes were all in my armpit. What were some of your experiences with getting back to exercise routine after?

    Hope all are having a good weekend.

    Chris

    in reply to: Coping Methods #55537
    chrisjax
    Participant

    I don’t know how you feel about meds but there are about a dozen anti-anxiety meds out there. I had to try a few to get the right one. For the most part they will all work it is just finding the right benefit to side effect. Most docs are pretty open to this. my primary gave me his first choice. Once I told him which effects I did not like it he switched me. After a few tries we hit the one that worked for me.

    Side note if you are going to try something new do not drive or go to work or be responsible for anything too important. They can surprise you in good and bad ways. Also I use this around biopsy times really bad days. These things are quite habit forming if used too often. As always talk with you doc.

    All that being said this is a great second or third option. Nothing beats natural meditation if it works for you.

    in reply to: Been a few weeks #55419
    chrisjax
    Participant

    Abdorma,

    Right on the money about the quality and experience at Mayo. Had a meeting with the general surgeon and he said it all looks like a go next Thursday. I have about 800 meetings on Friday for some preop things. The only one I know know is blood work. I will keep you up to date on what happens.

    Ms Poole,

    First thank you for the comfort and info that you have given me. You may not know it but it really helps. As for the is this necessarily. The doc kind of left it up to me. Said that I am in one of the judgement call zones so going either is acceptable. His reason for saying it was a good idea is that he does not like the secondary depth of the WLE being more than half the first and I don’t know how much this has come across in the board but I have a very type A personality and given the choice of pain and no better outcome but knowing vs no pain and not knowing I will go through it. I think that it was my father that said I would rather be damned for taking action than inaction.

    Since the original dx i have had 4 spots removed which brings the total to 7. One before the mel was atypical but all since including the one last week was completely benign.

    Ended up telling one friend since I need a ride home no real detail on why. Do you all tell people. I am a private person but I am also worried about the look people give when they don’t know how good the prognosis is.

    Seriously though, I really cannot thank you all enough.

    Have a good night,

    Chris

    in reply to: Been a few weeks #55416
    chrisjax
    Participant

    The doc said the main reasons were that the WLE had .4. since there is no way to tell if it went over and then down it could have been thicker but he thinks that it is unlikely since the first one extended to a peripheral instead of vertical margin.

    The way that he does them is anyone with enough risk factors gets one. He did say i still have a very low chance of positive but enough to go look. the things that we looked at was that I am 29 male with VGP and Clark IV. My personality is the type that says go aggressive and find out.

    Thank you for the link and responses. Do you think that the swelling and numbness is anything that would keep me from going back to work the next day? I work at a desk.

    Anyone had experience with Mayo?

    in reply to: Been a few weeks #55412
    chrisjax
    Participant

    Decided to go get a second opinion at Mayo. Lucky to live in a city with top level hospital. The derm there has set me up with a surgical Oncologist and they think that a SLNB is going to be a go. Have a meeting with him in early August. Don’t know if this is for a consult and then surgery or just doing the surgery. They took another spot off during the meeting with the derm. Waiting on the results now. Probably a week out.

    The original report said that the Mel extended to the periphery which I just assumed that since the WLE was shallower that the 0.7 was as deep as it got. The derm now said they can’t tell for sure. It could be 0.7 at the deepest still or they could be added together.

    Have any of you had the SLNB after the WLE or any situation similar. What is the recovery time from this. Can I go to work the day after?

    Sorry to be posting a lot; this is the only place that I really want to talk about it. I don’t want to tell family or friends yet.

    in reply to: Been a few weeks #55411
    chrisjax
    Participant

    Hey,

    Just got home from work and had a VM from the doc. The other three spots they took last week came back benign!!

    I really appreciate the responses to the posts above you all are a great help!

    Chris

    in reply to: Been a few weeks #55410
    chrisjax
    Participant

    Would you think that asking for a SNLB would be a good idea at this point? I mentioned this to my derm the first day but he kind of waived it off and I was not thinking that much at the time.

    in reply to: Been a few weeks #55408
    chrisjax
    Participant

    The Clark level 4 put it at t1b. I have seen that Clark level is not a factor as much as it use to be. Without that it would have been t1a.

    in reply to: Been a few weeks #55406
    chrisjax
    Participant

    Thank you for the reply. It was on the back of my shoulder, closer to my arm than neck. That is great to hear. One of the problems seems to be that a lot of the people who are posting tend to be the ones that have had a relapse and I think that it was giving me a skewed view. Seeing 22 years is awesome.

Viewing 11 posts - 1 through 11 (of 11 total)