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  • in reply to: stage 3c potential distant subcutaneous mets #57024
    Gilly
    Participant

    all the best for you too Sabine – I hope your immune system comes back up after the Ipi boost – I guess our systems have to re-learn how to work hard.

    in reply to: stage 3c potential distant subcutaneous mets #57022
    Gilly
    Participant

    Hi Sabine

    yes I am sure it is the same trial – and pretty sure it was placebo – nevertheless we were glad to have the scans/bloods and examinations that go with the trial – as we have done it since 2010 we are coming to the end anyway and we hope that having done the placebo my husband has earned some brownie points if he does progress – I have kept up with your treatment history and find encouragement from it – thanks

    in reply to: stage 3c potential distant subcutaneous mets #57020
    Gilly
    Participant

    Hi Catherine – thanks for your reply – my hubby had no side effects but he never stops working so even if he was tired he would not say !! I have said to the team at IGR that i thought he was on the Placebo and they said “just because he had none of the obvious side effects it doesnt mean he’s not on the Ipi arm because some people had no side effects” – I suspect they have to say that to support the double blind protocol. He has his echograph/biopsy next week (when he’s back from LA !) and then his PET on the 6th – I know it is a great treatment hospital but I just wanted to ask for the right things – Pd1 was on my list and in view of what was said on the last webinar (which are really superb by the way) which suggested zelboraf as a last resort only i was hoping to see what else there was first – I know that Dr Robert or her second in command Dr Mateus will fill us in if necessary but there is sometimes a different slant on research in Europe.

    Thanks

Viewing 3 posts - 106 through 108 (of 108 total)