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Viewing 15 posts - 1 through 15 (of 49 total)
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  • in reply to: Full Node Dissection May be History #70549
    Happy_girl
    Participant

    This is great. It does make me wonder- i did choose to get a CLND 4 years ago ( even though Dr Coit was very comfortable with me not getting one.). I do get very nervous abou not having done any extra therapy – Is it a question I should ask after i have my daughter in January- if I need anything, or since it is several years removed- it is not necessary unless (hopefully not) something would arise. I often wonder this when I see new things approved for 3A.

    I hope this makes sense! Thanks!

    in reply to: New pregnancy #70590
    Happy_girl
    Participant

    Thank you! One reason I’m a little nervous right now is that I had a friend who was just diagnosed with melanoma. I’ve been helping her get to OHIO STATE for what she needs- but I think just seeing her live this for the first time is bringing back the fear and uncertainty that first comes.

    I did tell her about this site as well, so she may join soon.

    Thanks for all you do,Catherine! It is much appreciated!

    in reply to: New pregnancy #70588
    Happy_girl
    Participant

    Catherine, do you know if other stage 3 that have had successful pregnancies without recurrence?

    in reply to: Lost pregnancy #70429
    Happy_girl
    Participant

    Thanks for asking! I have been doing well. I actually am currently 10 weeks pregnant again!im excited and nervous again all at the same time.

    We did find out from a test last time we lost a little girl (we named her Ruthie Lucille). She had severe heart defects and had Down syndrome. It made the loss easier because her life would have been so hard for her! She is still loved ( and would have been loved had she beenborn), but im thankful she didn’t have to hurt and struggle in ways that I wouldn’t have been able to fix for her.

    We are praying this little babe is healthy!

    in reply to: Lost pregnancy #70427
    Happy_girl
    Participant

    Thank you! It was a shock and has been a challenge. My brain goes a million different ways- did I do something? Was the baby not healthy? Was this a divine intervention so melanoma wouldn’t return….. it’s been a challenge.

    Thank you for always listening and being so supportive!

    in reply to: Spot near kidney #69128
    Happy_girl
    Participant

    I talked with the nurse- apparently it is a sub cm spot on my liver. I feel like this is even worse.

    in reply to: Spot near kidney #69127
    Happy_girl
    Participant

    They did a ct scan of chest, abdomen, and pelvis. I guess a tiny spot showed up- but too small to even do anything with. I am being seen at the james cancer center- OSU- by dr Kendra. The plan is to rescan in 3 months …. To compare I am guessing? I’m just really struggling with this because I was finally feeling good- but then this caught me off guard. It doesn’t help that I haven’t gotten to talk with my onc abt it either. That was the one scan that wasn’t back for my appointment with her. The chest was and was clear. I’m just scared.

    in reply to: Pregnancy and melanoma #68668
    Happy_girl
    Participant

    Thanks for your reply. I’m at my 2 year mark- but will be waiting a little longer. I did some research that showed 32 months was close to when most metastasis would have occured for stage 3a. It was from mskcc- so I know it’s reputable.

    in reply to: Castle bioscience #67487
    Happy_girl
    Participant

    You are very right, Catherine. He is amazing and one of the best! I think I was just having a moment of panic. I do trust his judgement and advise. I know I am truly blessed that I was able to see him. I’m doing better with my anxiety, but just hearing about castle brought it back to surface again.

    Thanks for your advice. It is much appreciated!!

    in reply to: Good news! #67105
    Happy_girl
    Participant

    Yay! Congrats to you all!

    in reply to: Stage 3a it’s been a rough road! #67059
    Happy_girl
    Participant

    I’m so sorry about the roller coaster ride of emotions! I understand! Who are you seeing at OSU? I go to the james cancer center and see dr Kendra. I’ve really appreciated her.

    in reply to: lymph node removal yes or no #66351
    Happy_girl
    Participant

    Hi Dave! I’m just visiting the board after not having been on here for a while. I don’t have advice on your actual question, but I did want to share with you a piece of my story. I was diagnosed at 30 (last April) 6 weeks after having my daughter. I’m now 31… And stage 3a also. I understand what your daughter is feeling. I pray that she is able to stay positive and k ow that she has hope! Never forget that!

    From my experience, I needed to know my family and friends were with me 100%. They are and that means the world to me. It sounds like you are there 100% for your daughter too. Even if she doesn’t mention it, she is thankful!

    Stay positive and have hope!

    in reply to: Stage 3A and first time mom all in the same summer #65779
    Happy_girl
    Participant

    Thanks so much for sharing your story. I know this is a terrifying experience. It is so hard to keep emotions under control. The hardest times for me were feeding my baby in the middle of the night ( gotta love those crazy feeding times ;) ). I would have so many thoughts of never seeing my daughter go to school.

    I’m glad you’re being seen at a great melanima center. You are right that the pet isn’t bad at all- nerve racking- but not bazar. Try to just relax.

    I am curious what genetic testing your getting done?

    Let’s keep in touch. As much as I hate that this is happening to you- I’m thankful for someone that shares practically identical thoughts, fear, and dreams.

    in reply to: Path report #65151
    Happy_girl
    Participant

    Also- at 3a…. Is interferon the only option? I’ve been trying to look around pretty hard and haven’t come up with any other treatment besides the watch and wait.

    in reply to: Terrified! #65126
    Happy_girl
    Participant

    Thank you both Meg and Catherine for your time. I meet with my oncologist tomorrow to hopefully discuss options- and am waiting to hear back from Sloan. I will update when I have more information.

Viewing 15 posts - 1 through 15 (of 49 total)