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Viewing 15 posts - 1 through 15 (of 18 total)
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  • in reply to: Mass on liver #63193
    Jdk27
    Participant

    I don’t know if any of my meds weaken the immune but will check to see. Thank you…….so appreciate any advice and will look into anything.

    in reply to: Mass on liver #63192
    Jdk27
    Participant

    Thanks Catherine, I live in Bradenton Florida.

    in reply to: Mass on liver #63189
    Jdk27
    Participant

    I all,, happy new year to you all. I was suppose to have the PET scan on Monday but it was canceled due to insurance company. Had the WLE today and it was the easiest of all to come off. Didn’t feel the needle going in at all……very impressed. Anyway, I asked the surgeon ” why am I getting so mny if them in such a short period of time” , she really didn’t have much to offer on it,other than sometimes patients with leukemia or lymphoma tend to get several melanomas due to the cells breaking down…..clan ANYONE please guide me on this?

    My husband and I are both annoyed with tht fact that I a getting them and don’t know why…is it simple ????? Simple as far as it was sun exposure back inthe day? Have had 3 Mel in situ and 3 malignant Mel’s all since march this past year….feeling VERY frustrated and scared, what do I do?

    in reply to: Mass on liver #63184
    Jdk27
    Participant

    PET scan scheduled for Monday dec 30. Wasn’t going to have it but Tuesday I had three biopsies and one came back early melanoma. Derm thought it was a basil as it was a pink bump, no dark pigmentation at all, to her surprise ( AND MINE) it was Mel. Having my sixth excision January 2nd. It’s not the size of my issues they are concerned about , it’s the amount of issues. I was not happy with the news yesterday, still a bit pissed off that I am doing this crap again, in 9 months. But know how fortunate I am. I will say I am now scared to have the scan as I know it can show false positives, and I can’t stop hearing the words my surgeon said to me the first time, ” it only takes 1 cell to go rogue!!!!! What is wrong with my skin???????? They told me I have very different skin, not the typical!

    in reply to: Mass on liver #63182
    Jdk27
    Participant

    Went to GI doc yesterday for results , the scan showed nothing, the doctor feel that I should have a scan again in 6 months, the radiologist thinks I need to have a MRI to decide on what they see on the ultrasound. I have an appointment with my dermatologist next Tuesday so I will ask them for their opinion on what todo. The doctor, my husband and I, all feel that it is nothing and wait for 6 months to rescAn, any thoughts?

    in reply to: Mass on liver #63179
    Jdk27
    Participant

    Yes, cohanja, the first one was 0.26, the other 4 that I had (5 Mel’s in 6 weeks time) were 2 insitus, the other two were 0.33 and I can’t remember but last one I think was 0.38. …….I believe it is benign, but still just a tiny part of me is very nervous. Normally, I do NOT even think about melanoma anymore, other than stay out of sun, put sunblock on every day and wear a hat when I am out, I feel very good about it all, except, like I said last night, when you go to the doc and they say you have a MSS on your liver, or, the skin doc tells me they are watching mores spots……just, a Reminder i guess, to be careful.

    in reply to: Feeling very anxious lately #62451
    Jdk27
    Participant

    Well I did go to derm, burned 19 things off of my face, biopsied 3 spots. Came back 1 pre squamish and pre basil so feel much better about that. The lump near my insitu spot, she felt that it was scar tissue, like myself. Mri just as a precaution, that came back inconclusive, radiologist said a dense mass but couldn’t make it out. I have the option to remove it or wait for another mri in 3 months. I decided to go to the plastic surgeon who did the surgery and he feels like we all do, scar tissue. it was just an insitu at that spot anyway. Feel VERY good and satisfied about it all.

    in reply to: Healthy habits #60837
    Jdk27
    Participant

    Hi Lisa…I get you, I am in the same shoes your in and it can be lonely. WE all have each other here. Good luck to you.

    in reply to: Healthy habits #60833
    Jdk27
    Participant

    Thank you all, for your supportive and encouraging words..I feel better today, we went to moffitt today for my 5 day post op. although they didn’t have my path reports as of yet, the Doctor Did answer my questions, and as long as I keep my appts with the derm, and they catch them when they are still thin, ( he did say i Will probably have more melanomas and most likely other skin cancers) then things look good. I am very sure the three biopsies he did last Friday along with my wide excision, will come back fine.

    in reply to: Healthy habits #60825
    Jdk27
    Participant

    Thank you , Catherine. I will look into your recommendations. As far as the question on sugar’ my sister had stage three breast cancer, a rare form of it and in both breast. It is has been five years now and she is doing well…..she told me a couple of years ago about sugar being our enemy as far as feeding cancer. That is what she was told, not sure where she is on the subject today but will certainly do what is best for me what ever that may be…lol, still trying to figure it out.

    I know someone else has said this, maybe plenty of others as well, but I have to say it, too. I feel like I can’t talk to anyone about this experience i am going through, except for this forum. They don’t understand how I am feeling. They are kind, and try to be understanding, but it seems like since the cuts have been made, it is all over with and no one needs to talk about it. I’m not done, I have lots of thoughts, concerns, and most important, questions.

    Thank all for this forum and support .

    in reply to: Another One #60260
    Jdk27
    Participant

    I just had my 3rd melanoma removed two days ago. April 9th I had 2 pre Mel and 2 melanomas, .26 and .33 removed. So five issues in two months time. I, too, am anxious and wondering what is going on. While I was having my surgery two days ago, they also took three more moles. Waiting to hear about them. I do keep seeing more brown spots showing up, (some of my Mel’s started that way)

    I am guessing this is what I am to expect for the rest of my life? Thank you all for sharing, this has helped me a lot, reading what others have to say, who have been through it.

    in reply to: Brand new to this, melanoma #60097
    Jdk27
    Participant

    Thank you Catherine……what is it with people thinking they need to tell you something bad? Getting my daughter to my doctor ASAP.

    in reply to: Brand new to this, melanoma #60095
    Jdk27
    Participant

    Had my excision done yesterday at moffitt. They did do their own path on the slides and indeed they were correct. 2 pre mels and 3 melanomas in a 3 month span. They ard still thin, .26, .28 and the latest one is .33 . I feel good abut it, but then at times I am still shaking my head as to why 5 issues all at the same time. Moffitt also took 3 moles yesterday to have checked.

    Didn’t really get a clear answer as to whether or not dispalstic nevi syndrome is involved or not. My uncle died of melanoma 3 years ago and his daughter had one recently . My adult children are covered in moles so very concerned for them……and last but not least, my moms 2 out of 3 uncles, passed away from skin cancer.( I know they have come along way since then, 15 years) I just can’t help but wonder what is going on.

    I had a client tell me the FREAKIN DAY BEFORE my surgery about her friend who had a Mel on her back, had it removed and was fine. Tw years later, she had a hard lump under her arm, no mole, no marks, just a lump, it was Mel again, and too late! Really? She. Had to tell me this the day before I to under the knife, AGAIN? Now, I realize I don’t know the circumstances, how deep, how advanced, was it in her lymph nodes, but sure scare the daylights out of me…..I guess I am feeling afraid, what do I look for, will it happen again, will ingest to have a long healthy life…and so on. I am a glass half filled type of person, love life, and happiness is my own choice, but struggling at the moment, this moment anyways…lol.

    Anyone else have multiples at the same time?

    in reply to: Brand new to this, melanoma #60094
    Jdk27
    Participant

    No, do you mean taking pictures of my body? Moles? Thank you Catherine….and Lisa, thank you …..moffitt is looking at my slides then will talk about the next step is. Most likely having excision on back in two weeks. Will keep you posted.

    in reply to: Brand new to this, melanoma #60091
    Jdk27
    Participant

    Thank you ,Lisa. That was good info, I had the word wrong to begin with, so you cleared it up for me.

    The last one is on my back, .33, going to Moffitt today and I know they will put my mind at ease…thank you again.

Viewing 15 posts - 1 through 15 (of 18 total)