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Viewing 15 posts - 1 through 15 (of 188 total)
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  • in reply to: Sunscreen Suggestion Needed for my Twins! #66615
    Lisa P
    Participant

    Hi, Jenni! It has been a long time since I’ve been here but saw your post and thought I’d respond to your question about a good moisturizer. I’m not sure if it’s on an approved list, but IT Cosmetics has their CC Moisturizing Liquid Foundation that is comprised of great ingredients and is SPF 50. Check it out and see what you think. It sounds like life is going well for you these days. May it continue on that way. Fondly, Lisa P

    in reply to: Unchanged mole biopsy – question #61975
    Lisa P
    Participant

    I’m really sorry you had to suffer for 50 days before finding out that everything was ok! That seems completely unreasonable to me as I can’t stand waiting the week that it usually takes to get biopsy results here. I’m not sure if you have choices where you live that would allow you to go to another health provider but, if you do, I’d certainly choose somewhere else to be seen for dermatology-related care.

    I happen to have a bunch of dysplastic moles and know that the ones we’ve biopsied that have come back as mildly dysplastic, are absolutely nothing to worry about. It sounds like yours are simply atypical (funny looking, as Catherine said) but, if you’re at all worried about the other moles on your body, I would encourage you to get the body photography done. I am most grateful that I had mine done a few years ago as it has helped on many fronts (i.e., diagnosing things that could be problematic,and bringing peace of mind regarding those moles that aren’t anything to worry about). Best of luck and keep us posted! Lisa P

    in reply to: What does a local recurrence look like when it first starts #62125
    Lisa P
    Participant

    Just checking back to see what you found out about the spot on your scar. Sending good thoughts your way, Lisa P

    in reply to: Whole Body Photography? #59675
    Lisa P
    Participant

    Hi, Bookie – I think this is very helpful, but want to offer another perspective. When I had my grid photos done a few years ago in Seattle, they had a woman read a magazine in the room while a male photographer took the photos. He gave me a gown and said he’d ask me to drop certain parts when he needed me to. I actually told him that I prefer to drop the gown altogether as I felt there was a better chance of him getting good, clear photos of every inch of me if we weren’t worried about how the gown was draped. Granted, I was uncomfortable and somewhat embarrassed, 😳 but told myself I needed to “buck up” and deal with it. I’m not saying this is the best thing for everyone, but I never had to see that man again and I have what have proven to be life-saving photos that helped idenitfy two subsequent melanomas. The bottom line, no matter what, is that grid photography is a very good thing for those of us who grapple with this crappy disease! Lisa P

    in reply to: Update #62042
    Lisa P
    Participant

    What excellent news!!!! Congratulations!

    in reply to: Update #62040
    Lisa P
    Participant

    Glad it went as well as could be expected. When do you expect to hear some news?

    in reply to: article #61569
    Lisa P
    Participant

    Can someone tell me what recurrence is? Is it that a new melanoma appears at the site of one that was previously excised? Does it mean they didn’t really clear the margins the first time around? Alternatively, does it mean that there’s some metastatic thing happening? Yikes.

    in reply to: mental health counseling for cancer patients #62005
    Lisa P
    Participant

    I’m so glad, Cohanja. Let us know how it goes and if you can share any tips the rest of us might employ.

    in reply to: Kitchen Sale Cranbrook #62009
    Lisa P
    Participant

    Is the NY Psychologist post on the Stage I/II newly diagnosed board spam or legit? It was out of context, so I couldn’t tell…

    in reply to: Another Biopsy #61982
    Lisa P
    Participant

    Thankfully and most gratefully, the pathology report shows mild atypia and, because the deep shave biopsy got the margins, I don’t need additional cutting. Hooray! :D I feel so relieved. Another bullet dodged… Thank goodness for all of you out there who help me navigate the waters when they’re rough. I can’t tell you how much your knowledge and support means. I hope all is well and thanks again, Lisa

    in reply to: Unchanged mole biopsy – question #61969
    Lisa P
    Participant

    The problem is that for someone like me who seems to have all her moles come back as abnormal/dysplastic when they’re biopsied, you’d need to shave off most of my skin to be rid of it all. Not a recommended approach. Therefore, after talking to a lot of other specialists and pathologists, my skin oncologist and I decided we’d take this approach: I go in to her for checks very frequently (once a month) and am seen by three different docs over a six month period. Every visit, my doctor compares my existing moles against the grid photographs I had taken after I was first diagnosed three years ago. If she finds anything new, or anything that has changed in any way, she performs a biopsy. Otherwise, we leave it be. My last biopsy was done last Tuesday, when she discovered a small black dot on a mole. While the mole has been there for a long time, the dot had appeared in the last one-two months. Thankfully, the results came back as mildly atypical/dysplastic and, because the deep shave biopsy got the margins, I don’t need additional cutting. Hooray! I’m actually going to share the news on my other thread, but thought it was appropriate to give you all this information here. Best of luck and do whatever it takes to stay on top of things! Lisa P

    in reply to: Another Biopsy #61981
    Lisa P
    Participant

    As far as I know, mine are all primaries as they were all contained and less than 1mm. I took the BRACA test which is for ovarian and breast cancer mainly, but was told there’s also a marker for the melanoma gene that showed up as negative in my results. I don’t think its the BRACA test is the one they’d do for the purpose of seeking melanoma. L

    in reply to: Another Biopsy #61979
    Lisa P
    Participant

    No family history or evidence in the BRACA gene test, not a ton of time in the sun (a few good burns as a teen), yet here we are. My doc does deep shave biopsies if a punch isn’t big enough and then, depending on the results that come back, does a full WLE. That’s why it appears I’ve been dancing with a bear…

    in reply to: Do size and moles look give clues about diagnosis? #61601
    Lisa P
    Participant

    Thanks for reporting in. While BCC isn’t the best news in the whole world, it’s pretty darn good as opposed to melanoma! It’s great that you’re now more aware and will be able to get regular checks to ensure you stay healthy and happy. All the best! Lisa P

    in reply to: New to this, help required! #61436
    Lisa P
    Participant

    Hi, Bonnie -First, I’m so sorry about your diagnosis,but am glad that you found this site. It’s a wonderful resource for information and comfort. I agree with Cohanja that you’re in good shape as 0.5mm is very thin and can usually be removed without further treatment or worry. Because you have many moles, it would be a good idea for you to see a dermatologist who is a skin cancer specialist, rather than a GP. Also, if you are able to find someone who does “grid photography” it will provide you with a baseline from which to measure possible changes later on. My photographs have given comfort in that my doctors can tell if something has evolved or if they have remained stable. I have had three melanomas removed in all and have been lucky enough to have caught them early. I’m incredibly vigilant about staying on top of things, and have put together a team of docs who look at me at different times every few months. I’m not sure how the health care system is in Scotland, but think you should ask your dermatolgist about what they might recommend in terms of who to see and how often you should see them. After my third diagnosis I was panic-stricken and thought I’d lose my mind. What I have since learned is that one can live a long and healthy life with this disease, as long as they can catch it early. The great news is that you are now aware and can make conscious decisions to stay ahead of the curve by being looked at regularly. Please take good care of yourself and stay in touch. Many of us are sending good wishes your way — Lisa P

Viewing 15 posts - 1 through 15 (of 188 total)