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  • in reply to: Sister Newly diagnosed with Nodular melanoma #56943
    mariamik
    Participant

    Yes , Radiation will be a follow up therapy , it will start within 2 weeks , then a special vaccine and regular check ups every 3 months

    I know Catherine that there are no guarantees with Melnaoma but our guarantees is the power of believing, knowing Sarah’s diagnoses then having clean nodes this is a miracle for me and i’m a strong believer in God , you should have seen the doctor when he delivered the news , he couldn’t believe it himself

    Here is a link about Dr. Michal (Sarah’s oncologist) vaccine , hope it can be of help

    http://clincancerres.aacrjournals.org/content/early/2009/07/10/1078-0432.CCR-08-3320

    As always forever and ever I pray for Sarah and for everyone across this earth facing this ugly disease ..

    in reply to: Sister Newly diagnosed with Nodular melanoma #56941
    mariamik
    Participant

    Catherine , for a change i have good news , after the radical neck dissection that Sarah had, pathology results showed no evidence of Melanoma neither in the skin around the original tumor neither in the 20 lymph nodes they took out

    I feel way better as i hope this means she has better chances of cure and overall survival , it does .. right ???????

    she will still go for radiation soon when her wound heals well , she’s happy about the news , i just hope she just gets happier and happier and definitely NED very soon

    As always forever and ever I pray !

    in reply to: Sister Newly diagnosed with Nodular melanoma #56939
    mariamik
    Participant

    another inquiry ? neither the surgeon nor the melanoma oncologist asked for any CT scans , MRI or PET scans , is that normal ? should i push for this or what ?

    in reply to: Sister Newly diagnosed with Nodular melanoma #56938
    mariamik
    Participant

    My friends , apologies for my silence but i had my hands full in the past couple of weeks , Sarah did the WLE and the SLNB on the 18th of October , unfortunately cancer was there in the lymph nodes , on the 30 of October , she underwent right neck modified radical dissection (an L shape from her ear lope down to her neck) . she was released out of hospital today , i have to say she’s recovering very well thanks to God , of course she has numbness in he right side of her face , her smiling nerve was damaged during surgery , they had to compromise it , still my Sarah can smile , a bit lopsided in the lower lip but other than that everything else is fine . she also cannot really chew anything , she only can eat softy food , the first days i used to bathe her and feed her , today she did it herself :) she does appear to have a double chin now (is that Normal??? ?) that even the left side of her face is swollen a bit ????

    She is still tired of course , yet better every passing day .

    She has amazing energy and ready for the next step of her therapy which will be in 2 weeks from now i guess .

    Next week she will take off the skin clips , after that Sarah will start Radiation for 6 weeks . and then she will start taking a Vaccine developed by Hadassah Ein Kerem (our hospital in Israel) that is like interferon , yet without the side effects of interferon . I asked about Mage 3 , they have it here but the oncologist recommended the vaccine as she’s working with it for so long now and she trusts its even better .

    I just hope this will be the end of this vicious disease , and she’ll be back to her normal life ASAP as she had to drop out of school in order to focus of her treatment .

    Any tips , advice, recommendations at this point is highly needed and appreciated

    I don’t know why but i feel better at this point and my hopes are very high of her being NED soon .I keep the faith and forever and ever I pray

    in reply to: Sister Newly diagnosed with Nodular melanoma #56936
    mariamik
    Participant

    Thank you all for your support , you are the only ones i can speak with about this issue .

    I’m still confused , the surgery of the WLE and the SLNB is not scheduled yet , i know that her original tumor was totally removed through the full excision she had earlier , but still i’m terrified that the other needed procedures are taking too long . My question as she had nodular melanoma , does that mean that the tumor is still growing even though it was removed or is it only checking the case of the lymph nodes.

    Kris you are absolutely right , she has a lot to give to this world , she’s amazing girl

    in reply to: Sister Newly diagnosed with Nodular melanoma #56933
    mariamik
    Participant

    Thank you for the support ! i need it , i’m loosing my mind here , so is she stage 3a not t3b according to the breslow , i’m so worried but her doctors seem more relaxed than me and assure me not to panic but i cannot help it , she’s my life , i’ve dedicated my life to her since she was born .

    I live in Israel not the US , im not sure if they have the same clinical trials as the States .

    According to her doctor , the tumor was totally removed but the WLE and the SLNB just to make sure nothing is left , i wanna believe that , i wanna believe she’ll over come this and look at it as a bad memory , she’s very healthy over all and no signs of anything shows on her but a slight scar where the melanoma mole was , what are her survival rates , She will be ok , i know she will , i should have the power of believing so , pray with me

Viewing 6 posts - 1 through 6 (of 6 total)