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Viewing 7 posts - 16 through 22 (of 22 total)
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  • in reply to: Can we donate blood? #61735
    Rojam
    Participant

    I guess for the same reason we are never classed as ‘cured’.

    Some things I read say if you’ve had cancer (except other types of skin cancers) you should never give blood again and other things say you can after five years of last treatment.

    However, my melanoma was very thin at 0.25 but I wouldn’t even consider giving blood again, even if I could, unless there was a proper national crisis.

    Rojam

    X

    in reply to: new mass in breast #61576
    Rojam
    Participant

    Hi tbeau,

    I also have had a breast lump investigated after my melanoma diagnosis. My melanoma was on the base of my neck/back and I was scared it had spread.

    It turned out to be a cyst.

    Try not to worry. Hope you get your biopsy and results quickly.

    best wishes

    X

    in reply to: Just need to vent #61254
    Rojam
    Participant

    I foolishly assumed no news was good news. Big mistake, should of been the squeaky wheel Catherine and others wisely recommend.

    Hope you get it sorted soon so you can move on with your life. So frustrating

    X

    in reply to: Just need to vent #61252
    Rojam
    Participant

    Hi there,

    I live in the UK and my wait time was as follows

    30th June – docs apt to show him four moles

    8th July – Hospital apt – agreed to remove one mole with the attitude it looks ok but if you say it’s changed we better take it off

    19th July – mole removed

    21st Sep – Hospital apt – ‘ very surprised’ result was Melanoma

    24th Oct WLE scheduled

    I changed myself from that hospital to another one, was seen and had my WLE done on the 5th Oct

    I really struggled with the stress the whole delay caused, especially when the path report was done quickly but no one bothered telling me as ‘ two staff were allowed annual leave at the same time when its only usually one’! I put myself into a 6 week long migraine resulting in a brain MRI needing to be done.

    It’s not acceptable. But you can only do what’s in your power in relation to changing hospitals if you’re allowed under your health care system. The key is to try not to panic if you have to wait.

    Now I’ve calmed down I can see I was lucky as the original excision removed all the melanoma and the WLE was just done to get bigger margins.

    Also on the plus side, the new hospital reread my sides so I ended up with a second opinion too.

    Take care

    Rojam

    in reply to: Help with path reports please #60205
    Rojam
    Participant

    Thanks worrywart,

    I’ll give them a ring. If that was their practise though would that then not put all the 1a patients automatically at a 1b due to the mitosis? Or would it have to state the mitoric rate as a number if its seen?

    Just wondering as 1bs get followed for five years in the uk whereas 1as only a year, obviously due to the higher risk.

    I will go with the second report as i feel its from a better hospital and is of course more favourable.

    Guess I want to be a 1a but want to be allowed 5 years follow up due to my dysplastic mole syndrome. Wouldn’t want to go every three months as that caused lots of stress but maybe once every six months. Need to find someone privately I think.

    Thanks

    X

    in reply to: Help with path reports please #60203
    Rojam
    Participant

    Thanks Catherine x

    in reply to: Help with path reports please #60201
    Rojam
    Participant

    Thanks worrywart.

    Guess I just find it odd to have two differing path reports. Seems strange that I had mitosis on such a thin melanoma so I’m thinking maybe the first one thought my melanoma was more 0.5 taking the regression into account. Doesn’t alter anything, I know, just curious really x

Viewing 7 posts - 16 through 22 (of 22 total)