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Viewing 15 posts - 1 through 15 (of 62 total)
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  • in reply to: newly diagnosed #66377
    tbeau
    Participant

    Hi George:

    You are so right with your thoughts. Good luck to you on the 24th. And keep us posted. I am going to check out the movie Winterlong mentioned. Sometimes we all need reminders.

    Tbeau

    in reply to: My sister Ann #66432
    tbeau
    Participant

    Thom:

    Thank you for sharing this story. It gives so many people on this forum hope. Your sister Ann has been through a lot and is very lucky to have such a caring brother. Very happy for you and your sister!

    Thank you.

    in reply to: newly diagnosed #66369
    tbeau
    Participant

    Hi George.

    I am sorry to hear of your diagnosis. This is a scary time as there are so many unknowns. Do you have an appointment at Sloan Kettering yet? They are a melanoma center of excellence which means you will be in the very best of hands there. I assume you will need a wide local excision where the tumor was located and a Sentinel Lymph Node biopsy to assist with staging you. This is a great forum and I’m certain Catherine and others will respond to you soon. In the mean time look through this website to become more familiar with melanoma and try not to look on the internet in general for answers as it can freak you out. I would also suggest asking your primary care doctor for a sedative to help you with sleeping until you get more answers from your medical team.

    tbeau

    in reply to: Update #66016
    tbeau
    Participant

    Hi Mary Sue

    I follow your posts regularly. Please keep posting. I wish you the best of luck with the surgery. I agree with Catherine that a plastic surgeon can work wonders. Good luck with your upcoming appointments.

    in reply to: SLNB again #65649
    tbeau
    Participant

    Hello Heatfire and Ozgirl:

    My melanoma was discovered completely by accident. I was having 3 raised bumps removed from my leg by a plastic surgeon. I had a fourth bright pink spot on the same leg. The plastic surgeon tried to explain to me that the bumps would grow back and that the scar from the removal could be larger than the bumps. I convinced him to take them off strictly for cosmetic reasons and he decided to remove the bright pink one too. It was the bright pink one that came back as melanoma. He has been the only doctor that I have dealt with who has been consistently professional and genuinely concerned. Every other doctor that I have encountered over the last 2 years has been challenging to deal with in some way. Someone was looking out for me to prompt me to go to a plastic surgeon to have 3 little bumps removed that have been on my leg for years. And all three have grown back.

    Heatfire – I’m sorry to hear about your negative encounters with doctors and hospitals. I’m glad to know that you too have not had a recurrence.

    Ozgirl -I’m right there with you – I think it was my vanity that may have saved my life too. I’m sure things will get better for you as time goes on. You’ll even have days go by where you do not think of melanoma.

    I guess those are my thoughts for tonight. Thank you for listening.

    in reply to: SLNB again #65646
    tbeau
    Participant

    Hi Ozgirl

    I am a Stage 1b with nodular melanoma diagnosed over 2 years ago. I run hot and cold with fear that I will have a recurrence. It does get easier with time but those thoughts don’t really go away for me. I also come on this forum for support and I believe that helps a lot. People don’t really seem to understand the emotional toll it takes on you unless they too have had cancer. That’s why I come here. If there was a support group in my area, I would consider joining it to help myself and to help people who are newly diagnosed. However, coming to this forum is easier in many ways because you can remain anonymous. Take care.

    in reply to: Second opinion #64489
    tbeau
    Participant

    Good luck to you tomorrow Bdeck. I will be thinking of you and looking for you to post on how you are doing when you feel up to it. ;)

    in reply to: Nodular melanoma #64500
    tbeau
    Participant

    Thank you Karenjane for your story. You make several excellent points, the best one being that you are an example of a positive outcome. :)

    in reply to: Second opinion #64484
    tbeau
    Participant

    Hello Bdeck1:

    I have been following your thread and your story. I refrained from posting because I wanted to tell you to do the SNB but who am I to tell anyone what to do. Like Cohanja said, you have to do what is right for you. I had a SNB and it came back negative. It was not a recommendation but “a this is standard protocol,” but my melanoma was deeper than yours 1.25 and it had mitosis and was nodular. I was surprised by one response on this thread that said that SNB is not recommended for stage 1 melanomas because I am a stage 1b. I wish you the best of luck on the 25th. Your most recent post and your positive thinking is wonderful! I too think that someone led me to a plastic surgeons office for a random “will you remove this from my leg because I think it is ugly and oh yeah you can remove the red dot on my leg too” And it was the red dot that came back as melanoma. Thank you for your post. It was a reminder to me that I think someone was looking out for me too. :D

    And what a terrific doctor to spend so much time with you and to explain things to you so thoroughly. And let us know how you make out on the 25th.

    in reply to: Nodular melanoma #64493
    tbeau
    Participant

    Happy Girl:

    I have nodular melanoma and I am a stage 1b as well. I’ve also wondered if there is a better chance of recurrence with nodular melanoma. I look forward to hearing from Catherine or another expert here regarding your question.

    in reply to: Heartbroken #64267
    tbeau
    Participant

    Carla

    I am so sorry to hear about the loss of your husband. I am at a loss for words regarding your post, your heartbreak and your child being fatherless. Melanoma Sucks! Bureaucratic BS Sucks too! I am so sorry. You and your family are in my thoughts and prayers.

    in reply to: Feeling defeated- does it get easier #64261
    tbeau
    Participant

    Hi Happy Girl. I’m so sorry you are going through this. It does get easier, but it takes time. Catherine always suggests meditation and that helps. I think Yoga helps, talking to people who get it helps, posting on this forum helps and time helps. I was freaked out for about 8 months. No one thing helped to calm my nerves but there are days now that I do not think of melanoma. I think it took me 8 months to accept the diagnosis and accept each day as a gift. I hope this helps you some. Enjoy your new baby girl.

    in reply to: New baby,just diagnosed, and terrified #64220
    tbeau
    Participant

    Hi Happy Girl

    I am so sorry to hear of your diagnosis. I am a stage 1b and like any melanoma diagnosis it is quite the emotional roller coaster. I was diagnosed almost 2 years ago. It hasn’t been easy but it does get easier with time. Congratulations on your new baby! Focus on your baby and be vigilant about looking for new moles or marks and go to the dermatologist every 3 months for a skin check. And, don’t forget to enjoy life every single day.

    in reply to: Melanoma Stage 1b & breast cysts? #63975
    tbeau
    Participant

    One elephant down and one to go! Looking forward to hearing more positive news for you! I’m happy that some of your nerves have been calmed. :D

    in reply to: Melanoma Stage 1b & breast cysts? #63973
    tbeau
    Participant

    Hi Joanie:

    Best of luck to you today. This stuff is so nerve racking! So sorry you have to go through this. Please let us know your results so we can help you.

Viewing 15 posts - 1 through 15 (of 62 total)