dazed and confused

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cowboy
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dazed and confused

Post by cowboy » Wed Oct 23, 2019 6:34 am

after regular exam Dermatologist took biopsy of mole, then dropped me as patient.(insurance). next Dermatologist read biopsy and excised small melanoma mole in his office.

Came back 3 months later for follow up and he detected another mole inches away from 1st mole. biopsied and found melanotic but deeper and so it requires a surgeon.



Here is where it get complicated; Dermatologist described surgery along with sentinel node biopsy , as no big deal and referred me to surgeon and oncologist. I visited Oncologist first who recommended a different surgeon and sentinel node biopsy.

I saw one of referenced surgeons who said zero, nada , zilch about sentinel node biopsy. I brought it up as something Dermatologist and Oncologist both prescribed. Surgeon said he would think about it.

Also I should note that the surgeon could not readily find the mole. its In the middle of my back and cm's away from the excised mole, with slight scar, I was kind of puzzled. he kept asking me where it was, and I pointed out that I can't see the middle of my back.

I contacted Dermatologist and he rattled off why the sentinel node biopsy had lots of complications. not mentioned originally.

So you can see my concern. I had no reason to believe no on wants anything other than the best outcome but now I am in situation of having to concern myself if they are working not in my interest but say the insurance company's best interest.

the other question I have is this: the Dermatologist does not know the surgeon , who is a plastic surgeon. is it possible that this plastic surgeon , referred by the Dermatologist for melanotic mole removal, doesn't actually know anything about that?




thoughts anyone!
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(it is not the main point of my post but how can an mole gestate into a melanomic mole needing deep surgery between the time a 1st mole excised in doctor's office to follow up exam, or 3 months?)

Catherine Poole
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Re: dazed and confused

Post by Catherine Poole » Wed Oct 23, 2019 7:01 am

Hello, sounds like you've encountered many issues. To start with please provide some details from your pathology report. How deep was the mole, (Breslow) was it over .76? Was there a mitotic value? The sentinel node biopsy is explained here: http://melanomainternational.org/melano ... bBA55JKiM8. We can help further with some facts.
Catherine M. Poole, President/Founder
Melanoma International Foundation

cowboy
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Re: dazed and confused

Post by cowboy » Wed Oct 23, 2019 5:50 pm

what I can say is that is was too deep for dermatologist to excise.

I met with surgeon late last Friday and discussed issue of sentinel biopsy discrepancy with dermatologist on Monday. Dermatologist said he had contacted surgeon about sentinel biopsy but I have not heard from surgeon as of 5PM today.

The oncologist referred me to a different surgeon, but i am trying not to step on toes.

Should the surgeon be in contact by now, 5 days since i saw him and 2 full days since the issue of sentinal biopsy was raised with him?

can i afford to wait while surgeon come to some conclusion or plan?

Catherine Poole
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Joined: Wed Jan 02, 2008 12:09 am

Re: dazed and confused

Post by Catherine Poole » Fri Oct 25, 2019 6:55 am

Step on toes? You have hired these doctors to work for you. They need to be forthcoming with information and a plan in good time. I would call and ask for a copy of the pathology as well. That will determine many things. Share it here and we will help you understand it.
Catherine M. Poole, President/Founder
Melanoma International Foundation

cowboy
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Re: dazed and confused

Post by cowboy » Thu Oct 31, 2019 11:52 am

thanks all. Dr's have gotten responsive.

can I give a sales pitch, probably preaching to the choir, but.....


I got a dermatological exam outside of Obamacare , by a familiar doctor not on my plan. i didn't expect cancer so i figured $100, what the heck, i know the guy.

well i got the diagnosis and went over to my plan where i have had absolutely no problems , apart from docs and their peccadillos. with melamoma there are no symptons, i can't even see the mole. so it would be easy to overlook or avoid treatment. instead i have insurance thanks to Obamacare.

my brother's throat cancer was diagnosed and treated thru Obamacare last year.


the 5th Circuit could repeal the ACA any day now.

joanmelda
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Re: dazed and confused

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